Here are some suggested organisations that offer expert advice on SN.
Autism and chronic diarrhea?(41 Posts)
What does he eat? (Nb you are among friends and it won't be worse than half of ours)
and in the nices possible way
That isn't causing diarrhoea.
Bananas and egg are traditionally firming. Egg yolk can be blended into mash/Mayo/sauces (lion marked)
Try also to see if you can mix a bit of live yoghurt into his normal ones (total full fat Greek). It is very soothing.
It may be "him" but there are things that can help.
The poo days will end.
I would (and did, with my dd when she was a similar age) be looking at some sort of dietary intervention. For my dd, that meant a gluten/dairy free diet, after a reasonable amount of research. I had her urine tested at Sunderland (think it is ESPA now) to check for digestive issues with gluten and casein (protein from dairy).
I had little mainstream (eg GP) support, but there are a fair amount of parents who find dietary/biomedical intervention helps enormously. It did with my dd.
Imo, it is worth reading up on.
You could look up Natasha Campbell McBride's GAP diet book too. Lots of alleged links between autism and the digestive system.
Yep, GAPS book worth a read, although quite full on and scary!
<nice to see you, madwoman, how is your ds? We talked diet and sentry issues a few years back>
Diet, intervention and autism is a good starter book, imo- easy read, and inclusive of recipes. A bit outdated, unless it's been re-issued.
I can only speak from my experience, livvy. Dd1 only ate gluten/dairy foods. Nothing else - lived for yoghurt, craved bread/breaded products.
The theory is that it is like an addiction, and once that addiction is overcome, the same craving/need is not there. Food replacement (gluten-wise) went smoothly enough for dd1. Dairy was harder to replace 10 years ago (she wouldn't touch soya replacements) but we muddled through.
Dietary intervention remains the single biggest thing we did for dd1. It completely changed her life.
I would second PandasRock's advice.
Children with ASD having gut issues is tremendously common. I think I'm right in saying the NICE guidelines about autism now include something about recognising prevalence of GI problems.
There is a whole biomed world out there if you are interested. Treating autism org uk is a good website to have a look at to get an overview.
DS was the same at this age we saw a private dietician who specialises in autism. I was waiting for her to look at the list of foods ds would eat (very limited) and say how awful it was but she just said "oh it's not that bad I've seen much worse"
She said if it was an intolerance then the only way to find out what was the issue was through a process of eliminating and reintroducing food items. She did recommend ruling out ceoliacs just in case.
He's 8 now and much much better in the poo department. We went gluten free for a long time but reintroduced it, although I have to say bread still causes issues so we avoid that
It's not the most limited range of foods I've seen (I had a memorable month where dd1 are raisins. That's it.). Are you able to sneak anything into the pasta sauces? Or vary the bread and add extra bits in?
I have to say I've never had reasonable mainstream (ie NHS) dietary guidance. I too was told, when I took dd1 along as a toddler with rancid nappies and undigested food in her poo, that it was to be expected with autism. That wasn't an acceptable answer to me - if she were not autistic, her gut symptoms would have been investigated - and so I had to try to find answers myself. Hence the biomed. I also had shocking advice when I needed dietary help with dd2.
I second ovenchips suggestion of Treating Autism.
I sympathise on the nappy front - dd1 was in cloth nappies until she was nearly 6.
It sounds as though you are doing all you can, which is all anyone can do.
We went for heavy bribery for supplements, and we were lucky and it worked. Dd1 would take all manner of foul concoctions from a 5ml syringe as long as she got some chocolate buttons afterwards. I think, after the first couple of weeks, she actually recognised that she felt better when taking them, which also helped.
Do you think you would be able to vary eg his bread? There are many really good recipes which add extra nutrients. Is cake a possibility? It can be easy to hide all sorts in cake and muffins.
Ds has abidec which is beige liquid. We started with a tiny bit every morning by syringe. He takes it easily now. Magnesium baths help too. I am more of a diet optimiser than a diet restricter but I think what works, works.
If Ds would drink smoothies I'd add whey protein powder....sadly not an option.
Just wondering if it could be chronic constipation with overflow, rather than diarrhoea?
Yes, to be fair, dd1 was nearer 4 when bribes worked. At 2 she wouldn't have understood.
I well remember the days of grating stuff, and hiding this and that.
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