Not sure this is the right place to post, but I was wondering if anyone else has a child with EB?
Our 4 week old twins were diagnosed with EB shortly after birth and I'm really struggling to come to terms with it.
We are still awaiting biopsy and genetic test results to find out which type they have but due to the fact that neither myself or DH have it, it looks like they will have Recessive Dystrophic EB or Junctional EB.
It would be great to chat to anyone who has any experience of can help me through this waiting period.
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does anyone have a child with EB?
2 replies
ShowYourSeams · 26/10/2015 14:24
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