Here are some suggested organisations that offer expert advice on special needs.
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Really struggling. Why is life so hard?(3 Posts)
Need to vent. I have 2 children, both boys, 13 and 2. Both have severe autism. Eldest has severe speech disorder, receptive and expressive levels of a 5 year old and not easily understood. Also severe learning disability and ADHD. The youngest has yet to say a word, has no understanding and has so many more sensory issues than his brother and is so repetitive. Both are so challenging, constant meltdowns, danger to themselves, need constant 1:1 supervision. We are totally exhausted and to be quite frank Im in a really negative place about it all. I know jealousy and negative thoughts are not helping and are irrational. But I question everyday why everyone else I see deserves to have a happy, normal life (and they seem to take it for granted too!) whilst I have been dealt a really devastating hand, twice. I do the whole ASD support group and come away wondering why my situation is so much worse. Everyone else has 1 affected child, almost always high functioning, with NT siblings. Thats how much of a negative place Im in - Im even resentful of other parents of children with SEN!
Is anyone in the same situation? SOmetimes it feels as though its just me
[Flowers] no practical help I'm afraid. Can you talk to the council about respite care? Sounds like you need a weekend off! What about your GP? Do they know quite how run down you are feeling?
We are in the process of getting respite the my eldest set up. He has been awarded 5 hrs/week and 1 over night stay a month - which is going to be a massive help. I just wish I didnt have this frame of mind. I went to the GP around Xmas time (it was then that my little one completely regressed). I was upset all the time but GP was sure I wasnt depressed - I dont think I am. Im not upset all the time anymore. Just bitter. And I wish I could shake off this state of mind.