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Wiedemann Steiner syndrome

(4 Posts)
helen1164 Tue 16-Jun-15 10:58:29

Yesterday our daughter was diagnosed with WWS wiedemann steiner syndrome- just wondered if there were any parents out there with children who have same syndrome. Would love to chat .

mumsuz Tue 16-Jun-15 17:11:30

Hi there - I didn't want to leave your message unanswered. I think there may be someone at my DD's new school (one of the mums that I chatted to before we accepted her place) whose DS has the same syndrome. I will PM you.

helen1164 Tue 16-Jun-15 19:12:11

Thanks for replying. That would be great.

tanya1990 Fri 19-Jun-15 16:03:51

hi my daughter has wiedemann steiner syndrome. i have sent you a PM and would be happy to talk

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