If you remember my last thread I was explaining how we just keep going round in circles. I spoke to DSs Paeditricians Boss a whole ago and was told that to get a second opinion referral I'd have to go back to my GP before going through PALs to get the Paeditrician changed. I tried the GP many moons ago and he said no. We tried again recently and he still said no. I don't want to say what for fear of 'outing myself' but you can all get the gist of what things Ds was saying that made me have concerns. Everybody from his GP to his Paed knew that but did nothing about a referral to camhs. Fast forward today. I have a hospital appointment at 9:10 am for various texts etc. I get a phone call back from the lady yesterday evening saying they had gotten Ds an appointment but they don't know when or where and it was a half day yesterday.
I tried this morning. Couldn't get through and I had to turn my phone off. I was having visual field tests etc done. Ring the Practice Manager to find out I'm in trouble for not attending the appointment this morning I didn't know about and I should have tried harder to contact them. Clone myself perhaps?
Anyway. We have an appointment with said GP Mon now and now I'm worried it's going to be awful with a bad atmosphere and he's not going to listen. Because I've complained about him. I actually made a point of saying to the PM that I didn't want to make a formal complaint but it did need raising. Please give me suggestions on what to say to him Monday. I have a habit of always saying the wrong things at the wrong time.
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Erm so this happened. Re DS.
snowgirl29 · 12/06/2015 14:12
So let me get this right!!
You were supposed to attend an appointment yesterday that you nothing about until after the appointment time 
I know us mums of SN children are fairly awsome but that takes some doing!!
Ineedmorepatience sorry for any confusion. I was typing in a hurry earlier.
Basically. I was told by the Paeds Boss that the correct procedure to follow was to go to the GP and ask for a second opinion referral and if that don't work then go to PALs. I did that. It didn't work. So I went through PALs. Apparently it's that serious they passed it on to the CCG. Hence why they're so Furious with me. PM made a point of telling me GP had been contacted on his personal phone by CCG and it 'should be a matter I take up with DSs Paed'. Which I had done, and was just following the procedure. 
It wasn't until the CCG got back to me last night at 4:50 to say they had got DS an appointment but they couldn't tell me when and I couldn't ring up as they close on a Thursday Afternoon.
This morning. I had to drop DCs off at Breakfast Club, run for the Bus for the appointment at the Hospital at 9:10. I kept ringing on the bus but it's first thing in the morning so of course I can't get through. Big Red sign at the Hospital Door saying 'Danger. Please switch Mobiles off' so I do and plan to ring later.
I rang later and that's when I got the telling off. Because apparently. They've got four lines and I should have tried harder. Shouldn't have gone to him (so I should have not followed the procedure then?). And I should have telepathically have known we had an appointment this morning without the need for a voicemail to be left or a text message sent (it's the usual practice - incidentally I got one straight after this phone conversation for Mondays appointment though!).
I kind of want to apologise. He's an amazing doc. But I'm just at a wits end as to what to do when I keep being fobbed off at every turn because the school have decided to tell all professionals involved that it's bad parenting. If it's bad parenting then can someone please explain my good as gold daughter?
Seriously had enough now. 
What a horrible mess! Schools have a lot to answer for! Why do they hold so much power when they have not a jot of medical knowledge or any medical qualifications between them!!
Sorry you are having to deal with this, I would make an appointment with the GP and explain calmly that you followed the procedure you were told to follow and that you are just trying to get the right support for your child!
Good luck 
Thankyou Ineedmorepatience he's already made us one for Monday. I'm just hoping he's still in an understandable mood last thing on a Monday evening.
I just wish the school would be honest. The Teacher called me to one side today to say he'd been playing up. I told them it'd be really helpful if this was raised in the CAF as that's what's stopping the Paed from taking us seriously.
It was quickly switched to "Oh well no more than the other kids play up"
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