My son has a rare syndrome and because of my experiences I have set up a community organisation called Same but Different. The Same but Different organisation uses the arts to raise awareness of disability and counteract prejudice. It encourages people to look beyond first impressions and provides signposting to support organisations. Through the Rare Project we show the person behind the condition. We are looking for people with rare syndromes/conditions to take part in the photographic project. Would you or your child like to take part? You can learn more about it on www.samebutdifferentcic.org.uk.
You can see other children who have participated so far by looking at the Rare Project section of the website. You can see one of the images on here.
If you have any questions please let me know. Thanks Ceri