Hi there dd2 has been referred for assessment for aspergers. She was meant to be assessment a couple of years ago at which time she would've been under 5 and they mentioned doing an ADOS test at the CDC however she slipped through the net. Now she's almost 6 she's too old for the CDC and will be dealt with in the new Integrated Childrens Services that Virgin Care have recently taken over in an old part of CAMHS.
So what assessment are they likely to do? I have asked but got no response? The lead said they may do a screening and decide not to assess? What does a screening involve? God it sounds so confusing. We are in Devon where all children services have been taken over by Virgin Care and I'm not understanding the process or what assessment will be done and when, it all seems very 'bitty'
Thanks polter what is process in your county as may be similar?? What has me worried is that they say they have upskilled a lot of workers to do the assessment to cut the wait time from two years to six months!
Our OT has said she has sensory integration disorder. Pead said she has issues in all three areas of impairment and fits criteria for aspergers however I can see her passing the ados if that makes sense? She seems to mask so well. Although saying that she totally ignored pead on last visit refusing to answer any questions at all! She's 5
Oh the joys of Devon. We waited a year to get on the waiting list and will have been another two years on the list for assessment before we start. Ds is now 9. It's DIRE. Nobody seems to return calls, give clear indication as to what us happening. I gave recently (in the last two months) been told we can't have SALT assessment as we can go on the SALT therapy waiting list based on forms submitted, then letter asking to come for therapy/assessment session, then told on phone no therapy is on offer, but offered assessment . Keep records, and expect little.
Hi I'm in Devon too and I think it has got a lot worse. Ds's diagnosis was over 8 years ago and he was 10. It was actually very quick but that was because he had severe OCD and had been excluded (illegally) from school so CAMHS put a lot of pressure on the Paed to diagnose quickly. However Salt was a waste of time. Fortunately he doesn't have major issues in that area. We finally got to see an OT a month before his 18th birthday when he should strictly move to adult services which has no service for sensory issues at all.
We have had input for his OCD but nothing really for the ASD though that is pretty normal I think.
There is little point in reducing the waiting list if the service is still rubbish.
Oh and there was me thinking it would be lovely to live somewhere nice like Devon
Time for a rethink!
Hope you can fight your way through the system poo and let us know how "Virgin Care" are coping! It sounds scary! Remember to follow up every referal with a phone call and offer to attend cancellation appointments if you are flexible with your availability, it is possible to jump waiting lists sometimes by doing this.