We had an appointment with the CDT this morning and DD is to be referred for an MRI scan.
The possibility of CMV has also been mentioned as I was very ill late in pregnancy so DD will also have a blood test.
Essentially DD has no real diagnosis. She has co-ordination difficulties and Speech difficulties but the OT she is seen by does not feel that these can adequately explain why she has the problems that she has at school.
Her genetic tests have come back clear. DD is just 6 by the way.
Feel a bit wobbly today and DH is away. Wondered if anyone has any experience of this and what it could show if anything.
We are waiting for an MRI for a similar reason to you. Ds has speech delay (he is at a language unit) and has low tone but his OT is still trying to work him out as she doesn't think low tone is the only reason for his difficulties. His genetics also came back clear.
I got the impression from the neurologist that the MRI will probably be the last diagnostic test they will try. Basically genetics and MRI are pretty non-invasive and pick up a wide range of issues. After this tests get more invasive and much more of a 'stab in the dark' so not considered unless they have a reason to suspect something. She mentioned the possibility of 'migratory disease' (I think that is what she called it) where some cells move to the wrong part of the brain when it is developing.
I know what you mean about feeling wobbly and not sure if you want a reason but I think having a reason may helps get ds the support he needs. They already seemed to take it a bit more seriously when I said he had been referred for an MRI!