I'll try to be brief but I know this will end up long! Dd is aged 11 and the third of my 4 children. I suspect some form of ASD. Some of the reasons why :-
She doesn't speak to teachers at school, only has for the past 2 years ONLY if it's school/work related.
Has a very small circle of friends and doesn't communicate outside of that.
Can't make decisions AT ALL - not even what sweet to eat first in a mix up.
Can't choose what clothes to wear.
Will only clean teeth after she's dressed, can't possibly clean them before getting dressed, .. "that's not how I do it" .. is the response if I ask her to.
Only just starting to be ok-ish about getting her hair cut.
Doesn't respond or sometimes even look at people when they talk to her, just hangs her head.
Kicks off/melt downs at some things which seem just silly.
Going out is a nightmare! Melt downs as we're trying to leave/get ready. Even if it's somewhere nice - swimming, bowling, days out.
She growls in anger/upset.
Can't cope with change/anything different/new.
Doesn't understand humour/get jokes.
Doesn't like loud noise.
She can't communicate her thoughts/feelings easily - it's like she knows the words but can't get them out. She just sits there in deep thought but nothing further.
She gets through her school day but then by goodness do we get stick when she comes out.
Many, many more .. I'll post as we go.
So, always just been told by school 'she's fine', despite not talking in school and just standing in yard if none of her friends are there, crying through special assemblies, not able to cope if they change rooms for PE etc ..
I've now done a self referral for her to be assessed with the help of the school nurse as school wouldn't refer her as she doesn't kick off in school, GP wouldn't refer her as it's not their job to do that!
Had first meeting with CYPS, they took a few details and gave me forms to complete. 1 was a conners report which I had to fill out based on when she was 4 years old! Seems daft when that's so long ago. Catalogue of errors have occurred along the way but we've now had another appointment with a 'care worker' who has said the conners report has come back negative, they sent a worker to observe dd on her last day of primary school - he concluded dd was shy at times but ultimately fine. Based on these 2 factors they've decided she's fine.??
What do I do now? It's been left that this care worker will complete a summary/thought shower type document and send to the psychiatrist who interprets the conners report, and we'll see what happens. She's only doing this at my request and she believes nothing further will be done as dd is fine.
I don't know what to do now ... I don't think it's appropriate to dismiss dd on the basis of 1 form and 1 visit in school. We really struggle with her at home and every day life.
I need help and advice please.
Here are some suggested organisations that offer expert advice on special needs.
SN children
Please, please help! What/where now??
frazzledbutcalm · 31/07/2014 18:04
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