Dd1 has a diagnosis of Aspergers, hyper mobility and fluctuating muscle tone, she ALS has dyspraxia ( not diagnosed but I strongly believe she has it ).
She was referred back to pead a few years ago after having trouble running and having pains in her legs, pead could not find any reflexes in her legs but was not sure if it was because she was not relaxing and said she has fluctuating muscle tone. I asked about the possibility of mild cp but he refused to look into it as my birth notes state I had a normal healthy labour and birth ( even know this was not completely true), she was then discharged.
For the past few days she has been limping and complaining of pains in her legs, today she had to run a mile cross country for sports relief but really struggled and walked it.
It could just be growing pains, it could just be her hyper mobility but should I be taking her to the gp for a 2nd opinion?
Could there be something else going on? Her sister also has hyper mobility and low muscle tone but seems to be able to run ( be it very loosely ) and is much more able despite her hyper mobility being more sever than her sisters.
Here are some suggested organisations that offer expert advice on special needs.
SN children
Dd1 (10) fluctuating muscle tone and hyper mobility, in pain :(
Marne · 21/03/2014 13:53
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