Hello, I’m new to Mumsnet and just looking for support /advice from people who may be in similar situation to us. DS 6.5, has recently been diagnosed with Social Communication Disorder. We were told he has significant social impairments, but his obsessive / repetitive traits are limited enough to exclude him from an Asperger’s diagnosis, as per the recent reclassifications (he would have had an Asperger’s diagnosis if he had been assessed a year ago.)
In spite of our expectations, his school have been fantastically supportive and have put in place an IEP and regular meetings with us for review, gained approval for an Autistic Advisory Teacher to visit and make recommendations. His behaviour in school and at home has improved no end as a result.
What I have found most difficult is that socially, starting before his diagnosis, we have become quite isolated. I did build friendships with a few mums of children he played with when he started in Reception, but over time I have found people making more and more excuses and our social plans reducing. Unfortunately he has got a reputation for being “naughty” and although his behaviour has significantly improved it is hard to shake the label. Plus I don’t have very thick skin and nor do I have terribly strong social skills myself, so I feel I am letting my son down somewhat by not building better friendships with the parents.
I have been trying to find a friendly support group, but I can’t find one that covers Social Communication Disorders. Would it be appropriate to go along to a group which focusses on ASD? I worry our issues would seem trivial in comparison, though many are similar.
Is there anyone else who has received an SCD diagnosis and where do you go for support? If your child has behavioural issues, how do you cope with the judgement of others? I just find it incredibly overwhelming.
Thanks.
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Social Communication Disorder - Not classed as ASD so where to go for support?
20 replies
justgettingby · 01/03/2014 23:50
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PolterGoose ·
02/03/2014 08:51
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02/03/2014 10:26
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02/03/2014 11:42
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