I agree with all of the above, we had a conversation with Dd3's new Paed about some confusion over her dx last week and she said that the UK diagnostics hadnt changed and were unlikely to at the moment.
My DS's paed diagnosed him (in November) with ASD rather than Aspergers on the basis of DSM5. This was even though she said he does actually have Aspergers, but she refused to mention it in the report at all.
Her only advice to me after the diagnosis was to read 'The Curious Incident of the Dog in the Night Time'.
Great borka How is that book meant to be helpful!! I just found it sad
The psychiatrist who dx'ed Dd3 wouldnt diagnose Aspergers either which has caused a few issues for Dd3 because she identifies with the Asd diagnosis that she was given but some proffs keep saying she has Aspergers.
In typical Asd/As pedanticness it drives her barmy . We have asked the Paed to write to everyone to clarify what her actual diagnosis is.
I think there is some confusion following DSM-5. I heard about a little boy who was diagnosed recently with HFA. Parent was told that previous to DSM-5 he would have received a diagnosis of aspergers, but that the condition is no longer recognised. Aspergers and high functioning autism are two completely different things. Most confusing.
Sorry to slightly hijack and possibly confuse further... My DS was dx in March last year. His dx was "autism", and the paed specifically said that they no longer separate out Aspergers, and that everyone on the spectrum gets the same dx of "autism". I assumed she was referring to the DSM. We're in Scotland though. Maybe that explains it?
She also went on to say that if we were reading online, we should look at stuff referring to "high functioning" or Aspergers, though DS has/had a speech delay/disorder so Aspergers would never have been right anyway.
zzzzz - yes, it's the language delay/disorder that turns it into a totally different thing. I don't understand how a child who would have received a diagnosis of aspergers (ie, no language delay/disorder), can instead receive a diagnosis of HFA (has language delay/disorder).
My understanding it that a child who would have received a diagnosis of aspergers, should now receive diagnosis of ASD, with abilities such as high IQ being noted.
I'd an SLT, so my personal focus is automatically the language aspect. I'm horrified that the two diagnosis seem to be conflated now by professionals who are making diagnosis.
My son just snuck in before DSM-5 with an Aspergers diagnosis from Daphne Keen. I'd be interested to find out if she's still using it - we did talk about the fact that it was soon to be discontinued with her.
I personally find the Aspergers description a really useful one - both in terms of "labelling" (I'm using that term advisedly) a particular set of characteristics, and in terms of offering functional support. If a child doesn't fit the criteria, there is still room to give a diagnosis of ASD, with a really clear set of descriptors.
I think when the assessment process is so long and complex, the least an individual with ASD (and their family) can expect at the end of that whole process, is an accurate diagnosis.