Hi,
I'm on the first steps of, from the little bit of reading I've done on this forum, what it seems will be a long, hard fought journey.
DS2 has been 'different' from the word go. I have long had suspicions that he's on the spectrum but I thought I'd wait until nursery to see if they agreed rather than engage the health visitor as my experience with health visitors hasn't been great and from what I can tell unless the child is quite profoundly affected then it's brished off in a wait and see way. And as I had DS2 (third child) 12 years after my second so although I instinctvely knew he was quite different from them I thought maybe I was remembering things wrong or, y'know, he wasn't that different... but DS3 coming along and developing in line with my first two children kinda confirmed my feelings.
Anyway. He started nursery in September and by christmas the nursery had referred him to an educational psychologist who in turn suggested referral to early years communication clinc and OT... (and gave me some resources to try with home that were from a book aimed at parents/carers of ASD children). We saw the therapist (am I right in thinking I refer to them as SALT?) Monday (I feel blessed we're getting such quick appointments, too, after everything I read here!) and she in turn has referred us to audiology 'to rule out hearing problems' (even though I do not think he has a hearing issue (nor does she!)) and she's doing the OT referral and also to a pediatrician. (also offered me a place in a parents group that lasts four weeks to 'give me lots of strategies to help DS2's communication development' (he has a large vocab, but comprehension is patchy at best).
Does this mean anything, or nothing?! At this point, I'd have thought if there was nothing going on, they'd not refer on, would they? Would they just say 'everything seems ok'? Have any of you seen ALL these different people and THEN they say 'Everything seems fine'?
I keep expecting them to say 'everything is fine' as I read so much on here about how things are minimised and... if he's anything, imh(and obviously unqualified)o, it's aspergers/HFA with hints of OCD and ADHD so not, y'know, glaringly obvious to other people looking at him that there's anything going on...
Ack. Am I minimising?! I want him to get the support he needs but if I jump through all these hoops and they say he's fine, then what? (or is that a bridge I shouldn't be thinking of crossing just yet?)
All so bewildering.
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Jumping hoops to no avail?
7 replies
MandaHugNKiss · 12/02/2014 18:25
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