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verbal dyspraxia (he is barely understandable to others) and going to mainstream school??? very worried mum!!! any advice???(3 Posts)
I really hope someone can give me some advice.
My son who is 3 yrs 9 months and due to start a mainstream school in September has verbal dyspraxia, he has seen many specialists who all say this is what it is but it is his speech therapist that needs to diagnose this. She is saying he is too young and will only say he has a speech disorder. My son cannot talk very much at all. He can say things like "yeah" (not yes) and no comes out as Nur, daddy is baba and apart from a few words (which aren't pronounced properly) he finds it hard to say many words at all... as for a sentence I think we are a very very long way off that. I am hoping to get him into a special school as I know no one will understand him, as his parents we find this a struggle and he gets very frustrated. He is starting to sign and we have a tutor coming to our house to teach us, which is ongoing until we don't need her anymore. This is helping him and he knows he can make himself understood by signing, he just has to learn signalong as he only knows the basics but we are very proud.
His speech therapist seems useless though and he still hasn't had any speech therapy, she has come to see him once and set him a few tasks to practice. The pre-school are totally behind us on believing a special school is best for him and are very annoyed with the speech therapist.
When I eventually managed to get through to her on the phone and discussed a special school wth a speech and language unit attached (one not so far away from us) her reply was that in reception they mostly play anyway so his speech side wouldn't really come into it. I was so disappointed by her reaction, especially as she has only met him once and that was 4 months ago. The mainstream school he is sue to go to have no one trained in signing and I can honestly say he wouldn't be able to communicate with anyone, he`d be lost. The speech therapist said he will get someone to sit with him in the mornings but did not have an answer when I asked what is he meant to do the rest of the time??
Please can someone advise me on how to go about getting him into a school more suited to his needs. I am a worried mum and feel so let down by this woman who I thought would be helping him.
Any advice is really appreciated.
Hi kim and welcome to the board. Have the preschool requested a statutory assessment for your little boy?
If not ask them to and if they say no you can do it.
Have a look at the IPSEA website or ask specific questions on here there are lots of people with lots of experience on here.
My experience is probably out of date (because the DC in question is 11 now so it was quite a while ago) but it may help.
I had a very on the ball speech therapist who got him Statemented before he was 4 (I know this wouldn't happen now). He also had the diagnosis of Verbal Dyspraxia by then. Due to the statement, he was then eligible for a special school - but when it came to the prospect of sending him off in a taxi each day I just couldn't do it (he's the youngest of four - there were all sorts of other complications), though, and I chose mainstream.
At mainstream he had 20 hours a week of 1 to 1 support, and 1 hour a week of direct speech therapy. And at home we spent hours and hours of "play" reinforcing the speech therapy. We had bags of toys starting with "P", bags starting with "T" etc. Mainstream did help him - he had lots of good examples of speech in front of him.
So - at 4 he was absolutely unintelligible. No consonant sounds at all. He had lots of speech - knew what he wanted to say, but unintelligible. By 6 he was doing well - by 8 we dropped the statement, because he just didn't need it. And now, at 11 - he's fine. Most people don't hear anything odd. He can sound a bit robotic - when he's tired or unwell or upset it all slips a bit and he'll muddle sounds or lose a consonant and then you can hear the problem, but that will always be the case.
My advice - ring the mainstream school and make an appointment to see the SENCo. Explain your concerns - they may be able to help with the speech therapist. Talk about what the One-to-one will be able to do. Ask if the SENCo thinks they'll be able to meet your child's needs. It may be reassuring, or it may give you the ammunition you need to go back and fight for the special school.
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