Ds (3.7) is booked in for a sleep deprivation/natural EEG the week after next. The instructions seem almost impossible to follow :
No drugs are used I assume this means melatonin, which ds uses normally to go to sleep in the evening
Night before EEG keep ds up 4 hours later than normal, then wake him 4 hours earlier - he must not sleep on the journey to the hospital. The appointment is at 11.30 ds normally sleeps after melatonin at about 7.30 then wakes between 4 and 5 - following these instructions would mean him going to sleep at 11.30 pm and being woken up between 12 and 1 am. Then trying to keep him awake until 11.30 - including on a 30 minute bus/car journey!
After the EEG it is important that ds sleeps for 2-3 hours, then gets up, but goes to bed early that day - huh!
I am at a loss as to how we are going to do any of the above. Sometimes, even if ds has been up since 5am he will be unable to get to sleep for a whole night, he will be sweaty and overtired and manic, but sleep doesn't come (this will happen especially if he is in a strange envoironment). Other times he has fallen asleep so suddenly that still has food in his mouth or is playing at a table at preschool - trying to wake him or keep him awake when he is like this is impossible.
Ds had an EEG a year and a half ago, which was also a 1 hour asleep test, but he had melatonin for this. The EEG showed nothing, but he has had different sorts of seizure like activity since - waking choking, losing tone down one side, absences, eyelid myoclonia with absences, and an episode at Christmas where he fell down, became very floppy and unresponsive seemingly as a reaction to getting very cold. I keep a diary of all these things and have filmed the eyelid movements. There can be quite a gap between episodes, and the myoclonia seems to go in flurries (he is doing it a lot at the moment, but it might lessen next week). I had assumed given this, that his paed would refer for a 24 hour EEG as there would be more chance of catching something.
Any ideas on any of the panicky ramblings above would be great - thankyou!
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sleep deprivation/natural EEG - instructions seem impossible-help!
9 replies
hazeyjane · 08/02/2014 18:42
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zzzzz ·
11/02/2014 15:07
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zzzzz ·
11/02/2014 19:51
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