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Here are some suggested organisations that offer expert advice on special needs.

SN children

Step one on the road to diagnosis.

3 replies

JoinTheDots · 04/02/2014 20:00

Happy and sad today.

Happy preschool have acknowledged DD is not just a little delayed and eccentric, sad that they also see a potential underlying cause (disorder, I suppose) so I can no longer cling to the hope they are right and she will grow out of it.

Health visitor doing a preliminary assessment to make a referral to the developmental paed next week, preschool doing a big developmental assessment as evidence to support.

From what I have read this is a long hard road ahead, and she starts school in Sept so I wonder if we will get anywhere before then.

Ho hum, she will always just be DD to me, not whatever label she is given (if any, I suppose) but I hate hate hate to think of her struggling with life and school, I just want her to be happy always. Only I know that might not be the case.

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LemonGoby · 04/02/2014 20:30

Hi JoinTheDots, just wanted to say I totally understand your feelings of sadness and fears for the future - we are in an identical position with our DD (who is also due to start school in September), although are a little further on in the assessment process. It's a worrying time, but surely they will benefit from problems being recognised now, and early intervention - that's what I'm hoping! Courage Smile

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PolterGoose · 04/02/2014 21:30

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Message withdrawn at poster's request.

JoinTheDots · 05/02/2014 10:14

Thank you both. It is so good to know there are knowledgable people here to support those of us at the start of things. It's a really odd feeling to be impatient to get things moving and get answers and at the same time want to slow things right down because it feels like i am setting out on a road there is no way back from. Life! Who knew it was going to be so stressful!

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