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why won't the ep go into school?

(39 Posts)
greener2 Mon 03-Feb-14 16:36:26

Message withdrawn at poster's request.

PolterGoose Mon 03-Feb-14 16:40:02

Message withdrawn at poster's request.

Handywoman Mon 03-Feb-14 16:43:00

I expect they have decided another pupil at school is causing them more bother so have re-allocated the slot. Don't be under any illusions about how little EP time is allocated in primary schools, the provision is pityful. You are getting an awful lot of 'doors being left open', greener2 you must be feeling quite a breeze! Do you feel she is coping better? I don't think the school's EP will shed much light on whether she has ASD or not, you really need another multidisciplinary assessment for that. But if you feel school are wrong about her coping better, then do challenge it <passes Rhino-hide cream>

thanks

claw2 Mon 03-Feb-14 17:14:17

I would ask how they know she is coping really well, particularly as the EP hasn't assessed how well she is coping.

Ineedmorepatience Mon 03-Feb-14 18:37:57

Can you ring the EP! I did.

If your Dd is on her list then she has the right to be seen and she must be on her list or she wouldnt have been going in to see her!

If you ring the EP's office and ask to speak to her/him they might just put you through.

Worth a try!

What is your Dd like before and after school!

greener2 Mon 03-Feb-14 18:48:58

Message withdrawn at poster's request.

greener2 Mon 03-Feb-14 18:50:05

Message withdrawn at poster's request.

Ineedmorepatience Mon 03-Feb-14 19:09:08

Keep a diary greener make a note everytime she is unhappy or stressed after school and if she tries to refuse to go.

It is becoming more widely recognised that children mask their symptoms at school and then explode at home.

claw2 Mon 03-Feb-14 22:41:55

Greener, that is exactly the question you need to ask how do they know she is coping really well. Are they mind readers? How do they measure coping well?

I suspect they mean she is quiet and passive and doesn't cause US any problems.

Levantine Tue 04-Feb-14 16:44:00

Definitely keep a diary, I wish we had done this earlier. It is really useful for spotting patterns and triggers, also very helpful when you do go for assessment. I haven't been following any previous threads, but you can ask your GP to refer you to local children's services , we did at schools suggestion as they said dx would be quicker. Apols if you already know this/ are doing it

StarlightMcKingsThree Tue 04-Feb-14 17:06:23

If you request a SA then during the appeal for refusal the EP will have to appear.

wetaugust Tue 04-Feb-14 17:16:35

Greener

You're barking up the wring tree. An EP cannot diagnose autism. For that you need to see a Clinical Psychologist or a Consultant Psychaitrist or a specialist Paediatrician.

You need to ask your GP for a referral for an assessment for possble autism.

Meanwhile, apply for a Statement directly to the LA. You do not need a diagnosis to do so. Statements are issued to provide support for behaviours - not for any particular diagnosis.

greener2 Tue 04-Feb-14 20:02:53

Message withdrawn at poster's request.

wetaugust Tue 04-Feb-14 20:09:11

Sorry Greener cake

We've all experienced the sort of frustrations that you are experiencing.

Start with your GP. Tell him you've been told by <whoever> that your DD may have autism and that you too have concerns and would like your DD to be formally asssessed for the condition. Be firm - don;t be fobbed off. Tell the GP she is experiencing difficulties at school.

Then apply for a Statutory Assessment yourself. There is a model letter on the IPSEA website that shows you what to write - it's actually very easy and people on here can help.

If the LA goes ahead with a SA then your DD will automatically see the EP and everyone who is currently involved with your DD will be asked for their opinions - including the professional who thought she may have autism.

That really is the best way ahead.

greener2 Tue 04-Feb-14 20:18:37

Message withdrawn at poster's request.

wetaugust Tue 04-Feb-14 20:25:57

You could ask for a teriary opinion. This is when the case is 'complex' and the 'experts' cannot agree. It's NHS funded and you'd need to be referred by your GP. Somewhere like the DISCO centre that Dr Judith Gould runs.

She's not too early at all for a dx of autism. There are children whose parents are on this board who have been dx'd pre-school. Telling you to 'come back later' is just dereliction of duty. It just means your DD is left on her own to struggle unneccessarily.

You don't need a dx for a Statement. I think it would be worth making an application for one.

claw2 Tue 04-Feb-14 20:28:24

Greener, do you know what kind of teams these were? Titles? and what assessments they did?

Dopey CAMHS psychiatrist on meeting and interacting with ds for an hour for the first time, told me 'he is very socialable, interacts well, what makes you think he has Autism' My reply 'his diagnosis of Autism'

Thank God CAMHS were not dxing.

wetaugust Tue 04-Feb-14 20:31:27

Thank God CAMHS were not dxing

True.

we had the misfortunate of a CAMHS misdiagnosis sad and angry

claw2 Tue 04-Feb-14 20:43:53

I really dont think psychiatrists should dx ASD Wet. It would also be helpful if they actually read reports from other professionals!

Greener if they are offering CAF, you could politely decline and say that you feel SA is a far better way of establishing needs and no need to duplicate.

greener2 Tue 04-Feb-14 21:18:17

Message withdrawn at poster's request.

StarlightMcKingsThree Tue 04-Feb-14 21:49:02

I would also decline a CAF tbh. It will just delay things and give everyone an opportunity to look at you in pity whilst achieving nothing but the potential to blame you.

StarlightMcKingsThree Tue 04-Feb-14 21:51:28

You can always put in writing that you have researched the point of CAF and think it would actually hinder rather than help get your child help and you'd like the least people involved as possible, to retain control over the information shared (and insist that you really don't mind repeating yourself to agencies) and the fastest path to an outcome for your child.

StarlightMcKingsThree Tue 04-Feb-14 21:53:11

greener, us here, - we've seen this before.

Levantine Tue 04-Feb-14 21:55:15

greener, it is so so tough. No more advice, but honks.

greener2 Tue 04-Feb-14 22:15:58

Message withdrawn at poster's request.

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