Apologies in advance for length but really need to rant please!
Rang just now to see if there was a date for dd ASD assesment (according to paediatrician she was bringing it fwd to January, then we were told it would be delayed due to sickness) apparently the next panel is in March and DDs name is not even on that one!!
I'm so angry, we were first referred to paed when dd was 2, she is now 4.5.
Last summer I got fed up of waiting and saw a private paed who said it was ASD, I told NHS paed and after previously sitting on the fence who clearly backtracked and agreed and said 'oh yes I can see now language hasn't come on its more than that and likely asd etc etc....' and she would bring NHS ASD assessment forwards!
I wasnt too upset about the delay as i had the private report and the education department were happy with that report for dd SA.
However I sent a copy of private report to the NhS paed as it clearly summarised every other report I had on dd (and she hadn't read any of them). Now on her last report after our routine appointment in Dec she has written basically that my private report is not a clear dx! I'm so angry and not sure what to do. The private paed clearly told me in the appointment 'yes it's ASD' but doesn't say that in report in black and white IYSWIM it does say dd 'clearly scored within the very significant range' it recommends access to ASD parent programmes, ASD specialist placement etc.
Along with chasing the NHS for medical report for SA and ed dept for proposed statement this week I've had enough!
I've had enough of their damn waiting lists and crappy service, had enough of the useless paediatrician who has been no help whatsoever in the last 2.5 years, she has no idea about my dd. I thought the dx process would involve observation at home and in school, some tests involved, not a 'panel' of people just discussing a child they've either never met or have met briefly in the same room a handful of times!
Sorry this has turned into an essay!
I suppose what I'm asking is, should i ask private paed to rewrite report clearer? do i even need the nhs dx aswell? Will it make any diffence if i complain about this crap service? and on a seperate note can lea go over time limit for proposed statement because of delay getting medical report? (Not the dx but the SA medical we had to attend)
The whole system is a joke and I know that's nothing new as I read everyone else's stories on here but it's just so unfair and maddening!
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Had enough! Waiting lists, SA, NHS & Private dx
3 replies
osospecial · 30/01/2014 16:02
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