DS is too heavy to lift now, cannot weight bear and is doubly incontinent.
His horizons are shrinking.
I have just realised he cannot lay on the sand on the nearby beach in the summer, we will pay for a festival all day ticket but he cannot manage even three hours sitting and cannot get out of the wheelchair and lie on the grass and listen to the music, when out we have to return home if he soils himself. I am a lone parent and I can only take him out if another Carer is present and I can't ask them to help lift him. There are no changing places close by. I want to take him camping or a trip to London it's pie in the sky isn't it??
What do you do?
Here are some suggested organisations that offer expert advice on special needs.
SN children
What do you do? Out and about with son in wheelchair
zebrafinch · 30/11/2013 12:34
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