ileus volvulus (twist in small bowel) advice!

[eggyeggyeggy1986]

Has anybody had any experience with their child having their small intestine removed?

[rlhmum]

not specifically but my daughter has had her large intestine removed and had several small bowel resections ..what would you like to know .

[mummeeee]

Yes, sorry, only just saw this thread. My daughter (now 5) had multiple bowel resections and now has v little small intestine ( around 23cm). As a result she is tpn- dependent ( fed intravenously). I can probably answer some of your questions as we have been doing all her care now for 5 years.

Can I help at all?