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1p36 deletion syndrome - anyone else?

(4 Posts)
southmummy2011 Tue 06-Aug-13 21:58:52

Hi all - my 2 yo son has just been diagnosed with 1p36 deletion syndrome. It has all been a bit of a shock although we knew his massive development delay was an issue. It's mainly communication with ds.
Anyway does anyone else's little ones have 1p36 - any support groups out there? How are your little ones doing?
Xxx

Bluebirdonmyshoulder Wed 07-Aug-13 00:33:03

Hi, not the same one but my DD has a chromosome abnormality. Happy to be of any help if I can.

Also have you heard of Unique, the rare chromosome charity? They may be able to help you further.

Feel free to keep talking to me, either on thread or PM.

McFarts Wed 07-Aug-13 10:44:34

My friends DD has 1P36 tho i dont believe she is am MNer i know there is a fab support group on facebook that she uses smile ill point this thread out to her.

SamsNewWheels Mon 10-Oct-16 22:51:22

Hi, I realise this post is very old. I'm new here. My son is 9 and has 1p36 deletion x

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