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Here are some suggested organisations that offer expert advice on SN.

Alternative to daphne keen

(45 Posts)
PearlyWhites Tue 23-Jul-13 09:03:01

Hi I want to take my dd for a private assessment , she shows features of hfa and is on an NHs asd pathway. However it is talking far too long for her to get a dx and we have lost faith in them due to loosing reports etc.
Ideally I would like to take my dd to see Daphne keen but her pa isn't the best at getting back to me. Can anyone recommend anyone else whose private opinion would be credible to the NHs?

nostoppingme Tue 23-Jul-13 09:53:40

Dr Angel Adams based in Kingston. Highly respected, works for the NHS and private.

nostoppingme Tue 23-Jul-13 09:54:28

Her report opened doors for me at FACT, so yes credible.

zumbaleena Tue 23-Jul-13 10:02:36

Do not see denise challis at great Portland hospital and I can say that with 100% surety esp for hfa

PearlyWhites Tue 23-Jul-13 10:03:10

Thanks, I will look her up, what is FACT?

PearlyWhites Tue 23-Jul-13 10:14:05

Thanks for warning zumbaleena

ArthurPewty Tue 23-Jul-13 12:04:08

Message withdrawn at poster's request.

lottieandmia Tue 23-Jul-13 12:20:02

We saw Dr Helen Wesley, based in Kent. Her report was excellent and helped us win tribunals.

hoxtonbabe Tue 23-Jul-13 17:45:12

I thought Margo was a SLT that specialises in Autism?

ArthurPewty Tue 23-Jul-13 19:43:34

Message withdrawn at poster's request.

ArthurPewty Tue 23-Jul-13 19:44:38

Message withdrawn at poster's request.

PearlyWhites Tue 23-Jul-13 20:16:23

Thanks for recommendations , I don't want to put my dd through the anxiety of an assessment plus spend a lot of money if the NHs will not accept it.
Has anyone heard of belle vue house in Ormskirk? They offer a two day assessment including DISCO and ADOS with Salt, Ot ,Ed psych and peadtrician. Ironically one of the consultants is actually my dd registrar although she has only seen registrars. They are both based at Alder Hey so am hoping the NHs will accept any dx they give. Especially as Dr de soysa leads the NHs team.
It costs £2225 is that about average?it includes and thirty page report with recommendations and over night stay if required.

Theycallmestacy Tue 23-Jul-13 21:55:30

Belle Vue has a good reputation. I know someone whose ds was assessed by them, she recommends them.

PearlyWhites Tue 23-Jul-13 22:47:40

That's good to know Stacey, thanks

PearlyWhites Tue 23-Jul-13 22:49:42

Posted too soon, theycallme do you know/ would you mind asking if the nhs accepted her ds dx and also which paediatrician assessed him.

PearlyWhites Tue 23-Jul-13 22:50:40

I meant dd, consultant in my earlier post not registrar

ArthurPewty Wed 24-Jul-13 07:35:22

Message withdrawn at poster's request.

PearlyWhites Wed 24-Jul-13 07:58:40

I think it is expensive because it is all four professionals if I wanted to see just one it would be £600 for half a day but they wouldn't diagnose.

ArthurPewty Wed 24-Jul-13 08:38:49

Message withdrawn at poster's request.

PearlyWhites Wed 24-Jul-13 08:57:52

My worry/ confusion is how can just one person give a dx ? I thought it had to be at least two professionals, was planning on also taking dd to a SALT if I had taken her to DK.
Can Margo diagnose on her own and the nhs accept it? Thanks

nostoppingme Wed 24-Jul-13 13:34:25

4 different experts diagnosed ASD in my son....

I think Belle Vue sounds very good!

zumbaleena Wed 24-Jul-13 14:27:07 a days only a clinical psychologist alone cannot diagnose. Similarly, an Ed psych also cannot diagnose. 1 person diagnosing maybe thrown out unless there is a standardized test involved. The best test is ados. To make sure NHs accepts your diagnosis, MULTI disciplinary assessment is best involving salt, Ed psych/clinical psych and community ped. Having said that, belle cue sounds humongously expensive. I would suggest London children,s practice centre. They are MULTI and half the cost and impeccable reputation.

PearlyWhites Wed 24-Jul-13 14:34:33

Zumb thanks for your post the team at belle vue use all four professionals you mentioned and do both Disco and Ados over the two days. The consultant paediatrician is my dd nhs dr although she has only met members of his team. The thing with London is although I was planning to travel to see DK I live a 30 min drive from belle vue so would save travel/ accommodation costs. I have provisional booked with them now unfortunately not till November.

PearlyWhites Wed 24-Jul-13 14:35:16

Will look up London children practice centre though thank you

hoxtonbabe Wed 24-Jul-13 14:35:46

Hmmm, this thread has me a bit worried now. (im not trying to hijack BTW) I have an appointment with DK in the winter, i was told I should send in a multitude of paperwork such as SLT. EP, etc reports she will also contact the school.

My LA CAMHS was initially saying they would do a multi, then changed their mind and said only the consultant would do it at the end of August, however she is not asking me for any additional papers which is very bizarre. Although i have DK I do not want to cancel the NHS appointment as I want to remain on the list so to speak as I already know they are going to say nothing is wrong as they are practically saying that already without seeing my son

Im confused

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