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Here some suggested organisations that offer expert advice on SN.

So confused! 2 days, 2 different professionals & 2 completely different opinions re: asd!

(58 Posts)
osospecial Wed 29-May-13 18:05:08

Ok so had first OT appnt yest and posted about how it had gone well and how I thought she had really understood dd. she said really early on she was surprised dd hadn't had dx of asd and thought she showed enough symptoms. She said she will put this in her report and send copy to paed suggesting dd be assessed quicker than 2 yrs time. (Paed not sure about asd as no issues with routine just speech and communication)

Ok so today we had an appointment with a Biomedical doctor and nutritionist who said, also quite early on, he didn't think dd has asd. He looked in throat and said it was red ( think he said strep throat) and in her ears he said there were small bubble type things behind ear drum which is stopping her hearing clearly. He has put her on dairy and gluten free diet and referring to ENT and doing hair, urine, stool and blood tests.
He said it was really good news and I want to believe it but my head just feels like its spinning really fast at the moment!
I'm confused as it doesn't explain things like the fact that dd babbles to herself in her own world not to me as if trying to communicate and also the fact that she completely ignores peers and has never even tried to play or even give eye contact to them. She is better with adults. And she is getting obsessive with things. the OT is not the first person to suggest dd has asd. Also we started this whole process in audiology but dd was discharged over a year ago. Feel like were going in circles.
Obviously I'm going to take this advice and follow what he says and see what happens and if this is right then it is really fantastic I'm just struggling with these two complete different opinions. I guess if he is right then all dd issues can be 'cured' and I'm scared to believe that in case it's not true.

moondog Wed 29-May-13 18:06:24

What's a 'biomedical doctor'?

Handywoman Wed 29-May-13 18:13:45

Yes what is one of those? What is the doc testing for? What is the diagnosis? You don't have to take anyone's advice.....there is no 'obviously' about it. Is this doctor knowledgeable about neurodevelopmental problems... In girls? Go with your gut, it's probably right.

babiki Wed 29-May-13 18:32:35

Well I don't think you needed to see somebody if you want to try the diet - it does appear to help a lot of people.
But if biomedical means what I think it means - he is absolutely not qualified to diagnose... So I would still seek proper ASD tests elsewhere.

PolterGoose Wed 29-May-13 18:40:03

From quick googling a biomedical doctor is someone who has studied biomedicine at PhD level, and biomedicine is a research field, as opposed to being a medical doctor who sees patients. So it's not a clinical role hmm

Nutritionists, unlike dieticians, are not AFAIK required to have any qualifications (think Gillian McKeith). Dieticians are properly trained, accredited and have specific professional standards, nutritionists do not.

OTs, like dieticians, are properly trained, accredited and bound by their professional body/ies. I know who I would listen to.

Please be cautious of alternative medicine. Restricting a diet should only be done following discussion with a medical practitioner (eg GP) and ideally in consultation with a dietician.

osospecial Wed 29-May-13 18:44:07

Not sure if that's what it's called then 'biomedical doctor' he is a doctor who advises on nutrition/ diet/ ENT issues? We had a grant from caudwell children and part of it was for 'biomedical' intervention and he is on their list of recommended people. A have heared about him on here as well, I think he deals with asd quite often.

PolterGoose Wed 29-May-13 18:46:07

Do you mind posting his name, I'm intrigued.

osospecial Wed 29-May-13 18:47:48

He is writing to dd gp to tell them what he has found and to tell them to refer dd to ENT on NHS so i will be getting a second opinion on what he said.

osospecial Wed 29-May-13 18:48:50

Ok don't see why not poltergoose I've seen his name on here a few times its dr Daniel Goyal from sincere health. Does anybody have any experience of them?

lougle Wed 29-May-13 18:57:17

According to this he worked initially in Occupational and Environmental Medicine, then purely Environmental Medicine.

Do you really trust him? I'm not sure I would on that profile.

PolterGoose Wed 29-May-13 19:09:06

He isn't a medical doctor, just seems wrong and exploitative to me. Here is a mention on an NAS forum with a surprisingly similar dx and treatment after one consultation. Sorry, I know how awful it is trying to seek answers for our children's difficulties, but I would take any clinical advice he gives (eg dx'ing an infection without taking a culture and recommending significantly restricting a diet on the basis of one consult and no 'evidence') with a pinch of salt.

osospecial Wed 29-May-13 19:10:21

Not sure who I trust anymore lougle, the NHS, the LA, don't know :/
I have been trying to get a proper asd assessment with Daphne Keen and I will continue with this. (her secretary actually rang me back today and I missed the call!)
The GF and DF diet are things if considered before after reading some posts on here about them so I think they are worth a try to see what the results are.
He is writing to DDs gp with his opinion and telling them to refer dd to ENT on NHS so I will be getting a second opinion on what he said about dd ears and throat today.

osospecial Wed 29-May-13 19:15:09

Thanks poltergoose just read that link. I will be very careful about what advice I follow. I'm glad I posted now.

lougle Wed 29-May-13 19:15:56

He is a medical Doctor, Poltergoose, qualified in Aberdeen in 2001. However, he is not on a specialist register of any sort.

In contrast, DD1's paed who has a 'special interest in neurodisability and autism' is on the specialist register for paediatrics and neurodisability.

Handywoman Wed 29-May-13 19:17:04

Also I would not say there is anything wrong with a red throat per se, tonsils and throats are pretty vascular. Does your dd have a sore throat? Swollen glands? If he thinks she has strep throat (streptococcus being a sort of bacteria ) is he recommending antibiotics?

PolterGoose Wed 29-May-13 19:19:09

At the end of the day neither an OT or a biomedical doctor can dx ASDs. Hopefully the OT had some strategies to try and I would give these a go before doing anything else. If you do all the interventions at once you cannot work out which is working. Similarly, if you choose to eliminate dairy and gluten you shouldn't eliminate both together to start with. Hopefully either your NHS paed will listen to the OT and see dd sooner or you get your appointment with DK.

MareeeyaDoloures Wed 29-May-13 19:21:45

Don't trust the LA. Don't trust high-fee private practitioners who claim to know more about your child than you, more about medicine than your paediatrician and GP, and more about ASD than anyone else.

Place a modest amount of trust in individuals within the NHS, always bearing in mind that even properly trained and regulated professionals may well be arsey, over-stretched, or just having a bad day. And a medium amount of trust in national specialists with a reputation for excellence.

Place a high level of trust in any professionals you know to be competent, capable and kind, proved over multiple contacts through time. Save absolute trust for yourself, and perhaps your DP / mother / best friend.

Handywoman Wed 29-May-13 19:24:15

MD that's the truest thing ever written on here!

PolterGoose Wed 29-May-13 19:28:11

lougle I'm not sure that occupational and environmental medicine does quality him to take on a clinical role, I've only searched briefly but everything reputable I've found seems to suggest it is about research and not about being qualified as a practising clinician.

PolterGoose Wed 29-May-13 19:28:41

qualify not quality

osospecial Wed 29-May-13 19:33:42

Thanks mareeeya that is very good advice!
I will get the NHS to have another look re ENT issues in case there is anything in it but will continue with proper asd assessment as well.
And I'll try the DF on its own first before looking at GF.
One thing I do trust is MN!

lougle Wed 29-May-13 19:36:03

He's on the GMC register for practice, Poltergoose.

osospecial Wed 29-May-13 19:38:51

Handy, no I was very surprised at red throat part a dd shows no signs of having sore throat

PolterGoose Wed 29-May-13 20:08:05

osospecial I'm sorry, lougle is right, he is registered to practise blush

I remain concerned at his advice regardless of this.

lougle Wed 29-May-13 20:11:57

So do I, Poltergoose - I'd no more be accepting of his diagnosis than I would of an orthopaedic doctor diagnosing my migraines.

The whole point of specialisms is that someone spends time training in a narrow area of practice.

Occupational and Environmental Medicine---->Environmental Medicine----> oh well, we all know that Autism's caused by your environment, let's have a bash [hmmm]

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