We and even the LEA are stuggling to find a school for ds3 .He is fuly statemented is in y3 atm.He is in a speech unit but as they can not cure the condition and can not improve any more he no longer meets the crtera .as well as the fact they are struggling with his physical needs and ds3 struggles in ms class of thirty in afternoon with a helper for the four of them from the unit
He has several dx MLD has been ruled out as in lot ways ignoring his pd he is mentally able we tried for a PD ss but after two days assessment there they said no as e s to far mentally than either of her primary classes but secondary would be ok as they on split site
But LEA have approached lots of Ms schools three times now and they refused saying that it would then be at detriment of other dc and his needs are to complex
They just haven't bribed the schools heavily enough. Attach £20-30k extra funding to your ds3's book-bag, and the headteachers will find lots of creative ways around any effects on other children's education
Email to the LA suggesting that since it's their legal responsibility to find him a school, they might want to try a bit harder you fully expect them to meet it, and unless they name another school, you will be turning up at <insert nearest non-dreadful MS> on Sept 1st
they have offered 40 hours of 1-1 funding 34 hours contact 6 hours non contact time .LEA caseworker is trying hard to force them
ironic thing is ds has no real behavioral issues other than in lot of ways he is only 5/6 emotionally 9 likes peppa pig but does also like pokemon/mario
his dx are EDS type 6 so rare and has extra complications not seen in most EDS Hearing loss Verbal and oral dyspraxia extreme low muscle tone so walking is slow and painful cant hold pen other than scrawl name but can use a computer use wheelchair for distance wears splints social and communication disorder Seizures automic dysfunction(prone to passing out and staying passed out for few hours)nothing to do other than let him sleep fatigue restricted growth( he only 112cm)
suspected chromosome disorder
The but being he is relatively bright in his own way Reads above his age , spells well on computer etc
he needs help dressing button wise and getting clothes on can do with help but is very slow
can walk but at his own pace and spend lot time hitting the floor but he is pretty good about it.has wheelchair for distance Has supportive seating but thats fine comes with him can barley hold pen but pretty good on computer we are considering speech device
in his statement he has 20-30 mins of OT at least 4 times a week 60 mins of speech therapy to
Poo phobias aside (and it's worth ringing the schools yourself to ask if it is a disabled toilet access problem) ask the various HT what would need to be provided to make accommodating your ds do-able.
40 hours standard 1-1 probably isn't enough. Normally the 1-1 isn't really a 1-1, it's a BOGOF (buy-one-ASD-dc-get-an-extra-classroom-TA-free) offer. They'll be worrying about the epilepsy and that he'll need 2 staff for lifting as he grows. Plus he'll need teacher time too, and sadly for the head, the outside input cost (EP, ASD teacher, ToD etc) is going to be clawed back from schools, if it isn't already.
Suggest you see if the case officer can try for 40h of HLTA, plus 10 hours of ordinary TA (to allow for the times he needs to be doubled-up) plus 6 hours of EP/ specialist teacher and perhaps garnish with 6 hours of ordinary teacher. And get an extortionate quote from an out-of-area residential school just in case they baulk
Alternatively, turn up with him for a look around; they might just be scared off by the list of needs and have forgotten that they're good at teaching ordinary dc and there's actually a fairly ordinary little lad here.
nope he does not need lifting is mobile so can do things for himself abet in odd fashion and slow but he does them as well as the toilet its just if catch a whiff that need to intervene
ah no the 1-1 is specified case of quantified and qualified in his statement as is his OT and speech .Physio and OT is written in for them to come in hour a term and to be available for contact in between .Not seen EP since year 1 has half termly visits from specialist teacher team
His chair in statement but fine that just come with him .Also has equipment eg computer and scissors etc written into
Cross posted. I was right then, specified and quantified is probably putting them off then, cos they can't just nick his funded TA for the other dc . The funding is probably still a big issue. It's almost certainly given with one hand and then partly clawed back with the other.
What else are the mainstreams scared of, I wonder? Could it be the fits? the autonomic episodes? being sued blamed if they help him with something and he dislocates a limb?
trouble is I do not want him going back there either as its been a disaster on so many levels he gone from loving school to hating it
Starlight the hearing loss is only mild hence no hearing unit .Its not to much of a factor long as you use his name or touch him first and tell him to adjust his volume as he can be loud without knowing
yes i took advice from mn right from when i applied in playschool and always had it like that
fits are not that often its more day dreamy style in school .autonomic ones while scary looking at first you get blase and don't even call ambulance any more
yes there is a protocol about don't grab hence supervision is in a break and lunch time be careful if ever lift him and if something pops out call me before ambulance as often goes back and sub laxes and loud cracks are normal ignore them he does .No plasters as his skin may come of with them ( i provide special tape etc)