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Information disclosure within the SEN system: your stories

(174 Posts)
inappropriatelyemployed Fri 24-May-13 16:57:18

I have what I think is some very interesting news about a possible campaign.

I have met with leading international privacy lawyers who are prepared to act for free in relation to raising the issue of unlawful information sharing between LAs and their NHS colleagues in the SEN process. This will include issues of disclosing reports to Tribunal without consent, passing on information without consent, discussing our children to fix up reports and inaccurate information in reports, etc

They have said they will organise a meeting with the ICO and throw their weight behind lobbying for the issue of clear guidelines.

The firm are prepared to do all the leg work for this as a pro bono project. They are looking for case examples of these practices so we can compile a dossier.

I know some of us have been on the receiving end of some very shoddy practices.

Can you PM me if you would like to get involved by sharing your story? This would be treated confidentially and used just to lobby the ICO. it could be anonymised if you would prefer

inappropriatelyemployed Thu 27-Jun-13 23:41:15

Thanks. That is really helpful but shocking, I am so sorry. What happened with your son?

Could you PM me and I will send you a form to complete and post this on.

NoHaudinMaWheest Fri 28-Jun-13 10:19:48

Long story afterwards. HT went ahead with illegal exclusion, we challenged it, BoG agreed it was wrong. By that time it was too late for Ds who in panic mode refused to return. He had home tutoring for the rest of yr5.

Meantime we had applied for SA -school was stalling- eventually LA issued a statement but without naming a school. We had said it was clear original school did not want him and had named another local school. We decided not to pussyfoot around this time and went to tribunal. Once tribunal date was set LA caved in and named school we wanted.

By this time Ds was in Link education for pupils out of school and in a reasonable small group. He was able to build up to attending the ms school 1 and a half afternoons a week.

LA reckoned it would be impossible to find a ms secondary to take him or that he could cope with (there were no suitable ss schools) and that he would stay in Link until 16. This was totally unsuitable as little in the way of specialist teachers or facilities and Ds is academically able and motivated.

More by chance than anything else we found a ms secondary able and willing to support him. He has just finished GCSEs there and the support has been excellent and as much a matter of attitude as resources. Even when his OCD had a major exacerbation (nothing to do with school) and he spent large parts of yrs8&9 housebound or in hospital, they were very supportive.

Unfortunately this school doesn't have a 6th form so he is having to move for A levels. On paper support at new school looks good as is attitude but we will see. Current battle with LA is over transport.

I have pm you for the form.

Summerloading Fri 28-Jun-13 21:51:54


inappropriatelyemployed Sat 29-Jun-13 22:21:09


Summerloading Mon 01-Jul-13 06:33:26


inappropriatelyemployed Mon 01-Jul-13 19:31:13

bump de bump

inappropriatelyemployed Wed 03-Jul-13 12:56:49


inappropriatelyemployed Thu 04-Jul-13 16:05:46


Summerloading Sat 06-Jul-13 07:55:14


inappropriatelyemployed Wed 17-Jul-13 18:05:21


bochead Wed 17-Jul-13 18:33:39


StarlightMcKenzie Wed 17-Jul-13 18:50:12

Ta. I'm on it. Just need to finish off one.

inappropriatelyemployed Mon 22-Jul-13 23:17:29


Summerhasloaded Thu 25-Jul-13 12:20:11


inappropriatelyemployed Tue 27-Aug-13 07:36:00


I'm bumping this. Your stories are needed.

This is a chance to do something small but practical and positive to try and change poor practices - or at least provide parents some clear guidance to argue with.

To recap, more information about the kind of examples we are looking for can be found here and info can be shared confidentially with the Inofrmation Commissioner to lobby him NOT to ask him to investigate specific cases.

Thanks for your help.

inappropriatelyemployed Fri 30-Aug-13 13:50:09


TOWIELA Sat 31-Aug-13 16:38:10

Now my story is over, and the fat lady has finally sung, do what you want with my story.

Very strange reading this thread back now months later with the benefit of hindsight and knowing our final result. I also appear to have written my posts on this thread under 4 different names (oops!). But perhaps name-changing here on a support board shows the level of fear parents have when fighting their LAs.

I hope more people tell your their stories, IE. The only way we can stamp out some of these terrible practices is if parents individually stand up to be counted.

inappropriatelyemployed Sat 31-Aug-13 21:34:21

Thanks, I would urge others to help if you can. I know it can be stressful and God knows none of us have got the time. But just a brief summary might really help add weight to our campaign and it's not every day you get a firm of lawyers prepared to act for free!!

inappropriatelyemployed Wed 04-Sep-13 22:31:05


inappropriatelyemployed Tue 08-Oct-13 10:32:14

Bumping guys - we still need your help and your stories.

inappropriatelyemployed Tue 15-Oct-13 22:01:17


hoxtonbabe Thu 17-Oct-13 05:31:41

Here we go..asked the information dept to send me all papers held with EP, this was accepted and about 2 weeks ago the officer emailed she had the papers and would get it out to me the next day...she's now refusing to give me the papers by ignoring my emails/update requests, we have now gone over the 40days with no explanation so now I have that to sort that out upon everything else's...they really are shits.

carrotcrusher Thu 17-Oct-13 05:44:19

Pity that they can't be ordered to provide this.
I am at tribunal shortly and,after months of saying that all paperwork was sent, I am now receiving things that were not released before hmm.
This has only happened following court orders though and I am sorry to discover that I was right about certain things being hidden. It's a shame it has to be like that and that there are no consequences for the people that try to hide factual information or pretend that it doesn't exist.

hoxtonbabe Thu 17-Oct-13 07:38:39

It shouldn't have to be ordered...we have a right to know what information is held on us or our children. They get my sick, the lot of them.

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