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What do you do-school saying def autistic, assessment team say she isnt

(12 Posts)
greener2 Fri 24-May-13 06:15:12

Message withdrawn at poster's request.

insanityscratching Fri 24-May-13 06:40:22

It is down to health professionals to give a dx but that's not to say that if there isn't a dx they are right. What do you think? If no dx I'd ask for a referral to a specialist diagnostic service for a second opinion myself. Even without a dx schools can use strategies that are helpful to children with ASD to manage dd in school and help her cope.

greener2 Fri 24-May-13 08:43:56

Message withdrawn at poster's request.

AttilaTheMeerkat Fri 24-May-13 09:04:04

Didn't think that a CP could make such pronouncements anyway and what if this person is wrong?.

You after all know your child best and you are her best - and only - advocate here.

Re additional support I'd seriously be looking at applying for a Statement of special needs from the LEA on her behalf.

KeepOnKeepingOn1 Fri 24-May-13 09:06:02

The Lorna Wing Centre may be the kind of place that DD could be referred for a second opinion. tbh this is more likely to happen if the teaching staff won't let it lie so the situation is far better than if all profs said there was no problem but you thought there was.

crazeelaydee Fri 24-May-13 09:32:56

When my Ds was being assessed for AS we had to go for an appointment to fill out a questionnaire with the CP now the same person had been the one to do the ADOS with Ds while her colleague took the notes from the side lines. As we went through the questionnaire she kept referring back to the notes from the ADOS if we said anything similar or to query cut a long story short there were some things on the ADOS notes which the CP saw differently and she said she had a debate with her other colleague after the assessment with Ds about some of the things which had been observed, even during the final appointment when we were told of the Dx she still looked a little uncertain about some of the information from the report which she was feeding back to us. As she said at the beginning of the appointment all information is gathered from everyone involved with my Ds (parents, teachers, ADOS, school observation, Educational psychologist etc) and then a panel decide whether the Dc gets a Dx so it wouldn't be down to the one professional. I should imagine this would be very heated as everyone would of seen things differently, in different settings. But if all info is pulled together that's when they get the bigger picture.

greener2 Fri 24-May-13 12:14:58

Message withdrawn at poster's request.

sammythemummy Fri 24-May-13 14:34:40

Hi greener your situation sounds a lot like mine, my dd will sometimes make me think that she may be somewhere on the spectrum but at times i doubt it. I took her to see a cp who did an ados assessment n said she falls below the range for asd and autstic traits. Like your dd she plays parallell to other kids but does engage with them (shares toys, talks to the altough what she says is jargon and will chase or be chased by them). During the assessment she was saying his to the psychologists, passing things to them n she has good pretend play so the cp wasnt worried about asd, but he did say she has issues (her language). Iv been going crazy with all the is she, isnt she, that iv decided that im gona concentrate in the therapy she needs for her languange n make sure school has provision for her put in place. I would suggest that you take all the provision that the school has to offer, it will do no harm to your dd even if shes not on the spectrum.

I wish you n your dd all the best.

sammythemummy Fri 24-May-13 14:37:12

I meant say hi not his

popgoestheweezel Sat 25-May-13 03:31:17

Have you looked at the new diagnostic criteria in the dsm 5? 'Imagination' has always been a confusing word for some of the less knowledgable professionals. 'social imagination' is very different to being able to play an imaginary game, social imagination is the ability to work out how a person is feeling (more than just the ability to say 'they look sad') and social contamination is the extent to which an individual can empathise with those feelings eg. Feel sad yourself when you see a sad person. The absence of this is a deficit in social-emotional reciprocity.
Over the years We have been told by ed psych, Head, senco, paed that our ds does not conform enough for a diagnosis of asd. this week we have had assessment for pathological demand avoidance by tertiary service and he does meet the criteria. autism outreach have told us he 'clearly has high needs'.

These are the new criteria (only released this week):

DSM-5 Criteria for Autism Spectrum Disorder
Currently, or by history, must meet criteria A, B, C, and D
A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:
1. Deficits in social-emotional reciprocity
2. Deficits in nonverbal communicative behaviors used for social interaction
3. Deficits in developing and maintaining relationships
B. Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of the following:
1. Stereotyped or repetitive speech, motor movements, or use of objects
2. Excessive adherence to routines, ritualized patterns of verbal or nonverbal
behavior, or excessive resistance to change
3. Highly restricted, fixated interests that are abnormal in intensity or focus
4. Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects
of environment;
C. Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities
D. Symptoms together limit and impair everyday functioning.

aliblake Sat 25-May-13 18:18:14

Can you get an out of county referral? I have no experience with this myself but someone I know mentioned this when I was concerned my son would be the darling little boy and not the little monkey he normally is, when it comes to his social communication appointment!!

greener2 Sun 26-May-13 21:38:43

Message withdrawn at poster's request.

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