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Disco this week, quick question re aspergers/autism and can they just have social impairment?

(21 Posts)
greener2 Mon 13-May-13 20:43:52

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Handywoman Mon 13-May-13 21:05:58

If your dd were to 'fit it all' I would guess she would be pretty rare! Personally I find 'descriptions of ASD girls' quite unhelpful, tbh. All ASD kids express the triad in different ways. My dd2's particular forte is rigid and inflexible thinking (we have just managed to have an argument trying to do a SLT exercise summarising 'my life so far' because she can't see what it is asking!) but the rest of the triad is there too. She passes as pretty normal socially, if you are not looking too hard but the interaction is developmentally delayed and superficial. But less noticeable than the rigidity.

Handywoman Mon 13-May-13 21:20:12

Should add this doesn't necessarily apply to your dd, who may not have ASD. Some kids will simply have trouble with social interaction. But then would not be diagnosed as Autistic if the triad of impairments is not evident.

Ineedmorepatience Mon 13-May-13 21:28:14

Dd3 was assessed using a DISCO, it was very indepth. It might show up other areas of difficulty that you dont even realise are there. As parents we are often really good at finding ways to cope day to day. We make little adjustments and changes to our lives without even thinking about it, just to stay sane.

My Dd3 is superficially social but there is no depth to her skills, so she can cope from day to day at school and on trips with friends but having one friend at home for any length of time requires too many skills for her and ends up failing.

She has many other issues too and was Dx'ed with Asd when she was 9. I posted an article about girls with Asd/aspergers last week, did you see it?

Good luck smile

Handywoman Mon 13-May-13 21:44:17

Agree with Ineedmore: even though my dd2 specialises in rigidity of thinking it was only when our SaLT used the word 'inflexible' that the penny dropped!!!!! Paed had already suggested ASD to me and til this point I dismissed it: I spent so much time dealing with/accommodating the inflexibility I could not see it!!!!!!

Gaining insight and perspective from others can be so crucial. So important to have an assessment by a good, experienced team of professionals.

greener2 Mon 13-May-13 22:04:38

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Ineedmorepatience Mon 13-May-13 22:06:19

I will try to find it and bump it for you greener smile

PolterGoose Mon 13-May-13 22:25:54

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crazeelaydee Mon 13-May-13 22:42:20

<pops in from kitchen> Hello, when we went for an appointment with CAMHS regarding our Ds. The clinical psychologist mentioned that she had had complaints that girls are always missed when going through the diagnosis process but this was due to them being a lot more subtle, meaning more in depth observations were needed and she believed that it was due to the fact that a lot more is "expected" from girls, I kind of get what she was saying but can't actually explain it TBH which isn't any help at all really is it?? fact I am still a bit miffed as to why she brought this into the conversation in the first place confused.

ermmm bump! <scuttles back off to do the dishes>

greener2 Tue 14-May-13 13:47:56

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crazeelaydee Tue 14-May-13 14:17:23

Hi greener yes dishes were done grin, I have to be careful sometimes I get a dressing down for my unhelpful posts blush.

Hypermobility on the other hand is something I do know about both of my nieces are hypermobile it just basically means that their joints bend more than they should eg when sat straight up in a push chair my youngest niece can lift her legs up and stick them behind the bars where the hood is attached so they are actually behind her ears....a bit un-settling to watch TBH smile. Back in the day I used to know it as double-jointed??.

Ineedmorepatience Tue 14-May-13 14:18:17

I first learned about hypermobility when I read Tony Attwood's complete guide to aspergers. He describes children with AS as having lax joints and often struggling with co ordination. I didnt really take a lot of notice at the time although Dd3 was falling alot and very clumsy.

The next time it was raised was by the OT's when they were assessing her motor skills. They said she was showing some signs of hypermobility, she then had a physio referral where the physio said she is hypermobile in all her joints.

As Dd3 has got older her floppiness has caused her a number of issues, she struggles with writing, using cutlery and sometimes just staying upright can be exhausting for her.

crazeelaydee Tue 14-May-13 14:19:31

Just to neice is hypermobile in her hips and the other its her hips, ankles, and elbows.

mrsbaffled Tue 14-May-13 14:36:08

Does hypermobility go together with AS, then?
DS1 has hypermobile fingers, elbows and shoulders. He can also put his feet behind his head. He is being assessed for AS/HFA....

PolterGoose Tue 14-May-13 19:25:18

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greener2 Tue 14-May-13 19:29:43

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PolterGoose Tue 14-May-13 21:52:00

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mindfulmum Fri 17-May-13 08:25:05

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Ineedmorepatience Mon 20-May-13 08:31:57

Wow, mindfulmum you and your Dd are exactly the reason why I fought so hard to get Dd3 a diagnosis.

Thankyou for sharing your story with us and I hope your amazing Dd continues to do well.

Good luck smile

crazeelaydee Mon 20-May-13 12:24:01

Apparently so mrsbaffled my Ds has always complained of pains in his knees, lower back, wrists which tended to be around the time that his trousers/sleeves shrink by 2 inches smile he has an appointment with a paediatrician soon and I have a huge list of things to tell him!. It also states in Tony Attwood's complete guide to asperger's book that clinical experience and research has indicated that some children with AS can develop further signs of a further 3 developmental disorder's. Tourette's syndrome is diagnosed in a child with a combination of at least 2 motor tics and at least 1 vocal tic which have lasted over 1 year. Children with a combination of AS and Tourette's could then go on to be Dx'd with ADHD which then can later result in signs of OCD.

My Ds has 8 simple motor tics some vocal tics, and 6 complex motor tics which he has been doing for over 2 years now, these were also observed at school by a member of CAMHS but nothing was ever really said about them until this book was suggested to me by the psychologist. It's a really good book, our Ds's Dx came as a shock to us and after reading this book everything just made a lot more sense.

mrsbaffled Tue 21-May-13 14:09:03

Ds2 has Tourette's with OCD tendencies. My family is so complicated smile

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