Hi all, hope everyone is ok??
Anyway, i have just come back from an urgent appointment with dylans physio as some concern about hios constant falling over which is appearing to get worse rather than better, and in a mild form they have said that he is having a relapse.
Anyway, the physio has now confirmed that dylan has Axtaxia and proprioception, of which they have ummed and arred about for a while which has also confirmed my suspicion about his abilities in the future???
They have now decided that dylan needs to see a hip specialist, who has surgeon in the title Also thay are getting him some new afo's, one for each leg, and both more restricted than his others.
This is where i need the help??? She has decided to apply for a special all in one suit of which costs a lot of money and the application process is long. She referred to it as a "second skin" or if unavailable a "tyco Lycra Suite"
Has anyone got any experiences of these things, if so your input would be most valuble to me as can't get my head arond dylan having to wear such a restrictive undergarment, i really don't want him to be uncomfortable, but she feels that due his what she has classed as pretty severe axtaxia, it would be really beneficial.
At the moment, they have loaned a weighted jacket with wrist and ankle bands of which he will come home with today!!!
Sorry to rant, i just feel like so much is being put on my little man, and i know that it is to help him, but yet again, it's something else to add to the already starable things that he has to put up with on a daily basis.
Butty.xxx
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butty · 19/05/2006 13:29
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