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Here are some suggested organisations that offer expert advice on SN.

A quick what would you do??

(57 Posts)
claw2 Wed 24-Apr-13 13:29:50

Ds has a food phobia, very limited diet etc (and hates writing)

I just got him to write a 'shopping list' and got him to agree to come shopping and for him to do his own shop ie only the things on the list, but he pushes the trolley, put the things in etc (he hates shopping usually and its a big performance to get him to come and he wont touch the food i put in)

Now he is refusing to go, as he has to get dressed (something else he hates) but will go happily if i dont make him getted dressed and let him go in his pj's and flip flops.

Im obviously asking him to a lot of things he doesnt like all in one go. Would you let him go in pj's or make him getted dressed?

claw2 Fri 26-Apr-13 08:26:06

Mareey thank you, we have a H&M nearby its certain worth a look, i will also check out places such as Primark too and see if i can find some cheap alternatives

claw2 Fri 26-Apr-13 08:33:14

The 'joint up' approach of professionals working together seems to involve giving everyone permission to talk behind my back.

CAMHS have been onside so far, BUT school and LA are using social services in a 'see we told you it was mum' way, social services agree with us.

I am also at the disadvantage that ds's therapist, who he hasnt since November anyhow, has now left and been replaced. so all they have to do is convince new therapist, who has never even meet ds or me.

claw2 Fri 26-Apr-13 09:03:13

Ooops wrong thread blush

MareeyaDolores Fri 26-Apr-13 15:06:12

Maybe not the wrong thread claw grin

Sudden eureka moment (maybe) that could you use the clothes problem to get an occ therapy appointment? There's no way an OT would think you'd secretly gone into his head and artificially tweaked the sensory processing settings wink

claw2 Fri 26-Apr-13 16:33:02

Mareey, i have OT assessments and reports coming out of ears, ds has a 'dx' of sensory processing/modulation disorder or its listed as a 'difficult' with his ASD dx. Its now just a question of getting them to provide therapy and follow the OT recommendations.

MareeyaDolores Fri 26-Apr-13 21:10:08

Yep, thought you did. Just trying to find a way of getting your DS onto a local NHS OT caseload (albeit short-term) so there's a sensible bod who knows something about neurology involved in these multi-agency meetings.

MareeyaDolores Fri 26-Apr-13 21:12:45

Sometimes one voice of reason is all it takes
Makes it harder for a forceful idiot to impose groupthink error

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