My 9.5 month old is developmentally delayed, has agenesis of the corpus collosum and some nerve conduction abnormalities. He isn?t sitting yet although seems to be getting there. He can roll from his back onto his front but not from his front onto his back. He has quite low muscle tone especially in his core. He doesn?t use his hands much although he can bring them to the mid-line, put them in his mouth, will put toys, finger food in his mouth if you put them in his hands. He does not reach out for things ? although does occasionally grab or bash things. It is not entirely clear that he is doing this on purpose. He does not babble but gurgles and coos and blows raspberries. He is super smiley and a very charming baby. He actively seeks out eye contact and loves people (is very sociable).
Currently we do not know what is causing his issues nor do we have any prognosis. I am struggling a bit with this ? in that I would love to know what to expect. Is there anyone out there whose child has similar issues or was at a similar level of development at the same age? How did it turn out?
What did you think helped ? I think physio is really helping my son. He is on the list for OT but the list is really long ? can anyone recommend a good private OT in SE London? Are there any other therapies/therapists that anyone would really recommend? How about toys and activities? Currently the 9.5 month old just fits in with his older brothers schedule (except when he has physio or doctors appointments) and he doesn?t really play with toys much. I?d love to have some toys that I felt he liked or do some activities that he likes and that are catering more for his needs. He currently goes to a physio led carer and baby group once a week and a baby singing class once a week. Any activity would need to also accommodate his 3 year old brother.
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Developmentally Delayed Baby
12 replies
sioba · 22/04/2013 16:48
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