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Hi, I'm ready...

17 replies

Rumours · 18/04/2013 21:33

I'm ready to introduce myself and fully accept that my 2 wonderful ds's are both autistic. They are fab wee boys but wow is it hard work. I've been on the SN boards a few times, dipping in and out, but I feel ready to introduce myself. I'm slowly starting to accept it all.
Ds1 was dx 4 years ago, ds2 2 months ago. I knew there was a chance a second child would be asd. Ds1 was 5.5 yrs before we decided we were ready to have another, he was hard work bless him. I thought I was the crappiest mother out there and couldn't understand why anyone would have more children. When we started the on the road to dx it all started to make sense.
So then ds2 came along when ds1 was almost 7 and he was different. I thought so this is what 'normal' is, but no, wrong again.
I can't believe how different they both are, it's amazing!
There's loads I'd love to talk about but will leave it there for now. I have been in mn for nearly 5 years now, but not properly on these boards.

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Ineedmorepatience · 18/04/2013 21:53

Hi Rumours and welcome to MNSNSmile

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starfish71 · 18/04/2013 22:07

Welcome to the board :)

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Rumours · 18/04/2013 22:08

Thanks Smile

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zzzzz · 18/04/2013 22:43

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ouryve · 18/04/2013 22:54

Hi.

I breathed a sigh of relief when DS2 ended up so different to DS1, but, yes, they both have ASD!

Keep dipping in, and if you have any questions, feel free to ask.

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Rumours · 18/04/2013 23:02

ouryve I was the same, ds2 is different, just a affected by autism differently. I knew that every autistic child is different but now I really get it. My two are opposites in a lot of ways, one is hypersensitive, the other hyposensitive.

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EllenJanesthickerknickers · 18/04/2013 23:28

Hi Rumours. Smile I've heard it said, 'When you've met one child with autism, you've met one child with autism!' My DS2 has HF ASD, is hyposensitive and seems unlike any book I've ever read on ASD! Grin His 'friend' down the road has the same DX, is the same age, but they're like chalk and cheese.

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BlackeyedSusan · 19/04/2013 00:23

dd is hypermobile and has a food allergy. i breathed a sigh of relief when ds was very good physically/not allergic. (stealth boast) turns out he has asd.

so the mix is... asd/allergy/spd/over excitabilities/hypermobility/gifted/2 children who have witnessed dv thank God non of those conditions are at the serious/extreme ends of the scale, it is tough enough to sort out what is going on form all that lot in the mix.

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AnotherAlias · 19/04/2013 01:40

Hey Rumours nice to 'meet' you.

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insanityscratching · 19/04/2013 06:54

Hi Rumours, I have a son and a daughter like chalk and cheese and they are both ASD too. Their paed (retired) was fascinated by them because they are like mirror images of each other. I have three others as well who are all totally different too, not sure how I managed to have a house full of very individual young people really.

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Handywoman · 19/04/2013 09:32

Hi Rumours and welcome Flowers

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moosemama · 19/04/2013 10:22

Hi and welcome Rumours.

I have 3 dcs.

Ds1 is 11 and has ASD, ds2 is 9 has lots of traits, but none that cause him any problems - yet and I don't think he'd get a dx. They are chalk and cheese in just about every way possible.

Dd is 4 and we have always thought she's nt, but just over the past month or so has been starting to show signs of rigidity, poor emotional control and very literal comprehension - very similar to ds1. Hmm She is highly sociable, has lots of friends, plays fantastic imaginative games and hasn't given any cause for concern until the past few weeks. Of course being at home for nearly three weeks with ds1 over the holiday could mean she has just picked up bad habits by modelling her behaviour on his and I am probably being paranoid, but you can't help constantly 'watching' younger siblings can you? Doesn't help that she had her delayed MMR at the beginning of the holidays, so of course I am now flagellating myself about that as well, because although we know he had ASD from birth, the most noticeable signs in ds1 started when he started nursery - a couple of weeks after his MMR.

Having said all that - she is currently in the bath having a game where her foam letters are little creatures called blackwhites (I blame Pokemon), who are having a swimming competition with their 'mommies' all watching. There is a prize for each of them after the race - each of which is a different bath toy. Very different picture from the child that completely lost it because the dog knocked the line of cars, that she'd diligently laid across the living room floor, slightly out of alignment the other day - not to mention the one who had a total screaming meltdown because Grandma put her lunchtime drink in the 'wrong' cup yesterday. Confused

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Rumours · 19/04/2013 11:04

Smile and Thanks to you all for saying hi and telling me your situations. Do any of you have particular 'autism days', you know when they just seem to be in one all day? Some days can be ok, then some days are just awful ad I'm left trying to figure out what the trigger could have been. Sometimes I can pinpoint it, others I have no idea.

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moosemama · 19/04/2013 11:31

I think they often trigger each other on days like that Rumour - especially when they are chalk and cheese. I know my three do.

When something sets ds1 off and he's more stressed and anxious than usual he becomes hypersensitive to noise and movement. He gets snappy and rude, which agitates dd and she ends up chaotic as a result. Their fighting and shouting upsets ds2 and then he's off on one as well.

School holidays are fun in this house! Grin

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NoHaudinMaWheest · 19/04/2013 12:01

Hi Rumours and welcome. My Ds is 16 now, has Asperger's syndrome and OCD. He wasn't diagnosed until 10 and I spent a lot of that time thinking that his problems were due to my poor parenting so as you said a relief to get a diagnosis.
It must be hard coping with two with ASD. My dd is 13 and although she has other physical problems at the moment she isn't on the spectrum and is very tolerant of Ds.

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Mckenngp1 · 19/04/2013 13:01

Hi I haven't really introduced myself on here. I have 2 dds, our 7 yr old has a diagnosis of aspergers and ADHD and our 5, nearly 6 yr old dd is awaiting camhs and paediatrician apps. We thought our 2nd dd was nt, although we always had terrible problems with her sleep (or rather her not sleeping, ever) and food issues. Now she is heading for 6, she seems to be having more difficulties than the elder one ever did. They are like chalk and cheese too, I always say I have a tortoise and a hare!

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MareeyaDolores · 19/04/2013 21:15

Welcome. Have ds1 who is lovely, with ADHD and ASD, dd who is fantastic and definitely 'quirky', and ds2 who... well, lets just say he's very gorgeous, very determined, and neither we nor the various professionals can figure him out at all Grin

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