Here some suggested organisations that offer expert advice on SN.
Moose here - again. Following on from my epilepsy thread.(639 Posts)
Hi folks, we were up to 995 posts, so I thought I'd better start a new thread
Too expensive to copy the MRI is my guess, though no clue on the EEG, that's easily photocopy able.
House is as good as it's going to get, which isn't great, but it's not exactly the ideal time for this.
Happy 40th to Leonie's DH.
I am really concerned that nobody wants to see you, or believe you, when you even have a yellow card.
Then again, it always seems to be the case with epilepsy - never taken seriously and expeditely. It's why I lost my peripheral vision, because the Neuro left me over a weekend on Topamax.
Really pisses me off tbh.
I really hope it starts to get better, not worse. Hopefully by Sunday afternoon / Monday morning you should feel a bit better?!
It took about 4/5 days in total for the Topamax to totally leave my system.
Do you know the worst of it? The only time I had full control of my seizures was when I was ON Topamax, despite the horrific side effects!!
Gosh, I go out for one morning to get a much needed haircut and I'm really behind the thread.
Couthy, sorry you are in so much pain. I have Naproxen for the CRPS and it does make me woozy. If I take it with cocodamol I sleep like the dead for hours and hours on end.
So pleased for you re the new house, it's about time you caught a break with something. Glad ex finally manned up and decided to help as well.
Leonie, you are more likely to react to a drug if you have a break from taking it and then go back to it - for the same reasons as no-one reacts to a wasp or bee sting the first time, but can then go anaphylactic on the second sting. It's because the system has already created antibodies to the perceived invader and they go into overdrive when the meet the same invader again.
The hospital will be aware of this and they do want to see you, knowing that you've already stopped taking the drug, so they are taking it seriously.
As for the MRI and EEG copies, don't worry about what they are thinking about you having asked for them, just tell them it's standard practice in the USA, so you just assumed you'd get a copy and thought it was an oversight.
Happy 40th to your dh.
... and in my news ....
Ds got his funding for the indie school!
Dh called this morning and they confirmed that the statement is being reissued today with the indie school named, they have done an internal transport request and the Officer says it's pretty much a foregone conclusion that he'll get transport.
I feel like a massive weight has been lifted off my shoulders.
Have IEP review next week and I shall take such pleasure in informing the SENCO that he has had his place confirmed, because she was so snotty about it a couple of weeks back.
LEA Officer also said the school should call an immediate AR, inviting the new school, to discuss transition arrangements and sort out his orientation visit. If they don't say they are going to do so asap at the IEP meeting I will call an emergency AR myself, based on the state ds is already in re transition.
I am a leetle bit in shock I think. I can't quite believe it's actually happening!
Oh - and other news - I actually like my haircut for once.
Thanks Leonie, I hope we get similar good news when it's your dd's turn - then our dcs will be at school together!
So sorry you are so low, it's not surprising, but it's totally unfair on you.
I will keep everything crossed for you that the next drug they try you on will be 'the one'.
House lady is running late - I'm going to have to go to my GP appointment (about my joints & trying to get a referral somewhere, because even if it's not Rheumatoid arthritis, it's still some kind of arthritic pain.).
Can't miss it as GP is coming in early specially for me.
House lady has rearranged to come out at 3.30pm, which is going to he very 'tight' with the school run by bus...
Always the way with me - book appointments that don't even overlap (11-1 & then 2.15), yet something always goes wrong...
And yes, I HAVE discovered that while naproxen makes me woozy, if it's combined with cocodamol I sleep like the dead. Which in my case is probably more to go with the cocodamol because that names me sleepy on it's own!
OMG, Moose! YAY!!
I'm so glad for you & your DS that things are working out with education.
That has made me cheer up!
Leonie - we can be on the PTA together! <fails to admit I have never been on a PTA in my life>
We have had to just give in this year re ds's current school. He's not getting his statement provision, despite the school being caught out in front of the LEA Officer - they are filling in forms and ticking boxes, but not giving the support and his bloody TA keeps upsetting him with her size 10 boots and total inability to understand ASD.
You have plenty of time to check out schools for dd1. Most people start in Year 5 and visit the school open days in the autumn term, which are actually designed for the current y6, but it helps to do it early, so you know what to discuss at AR. We missed the boat on all that, because ds's statement was only finalised in the summer holidays between y5 and y6. Ellen is a good one to speak to about all this stuff. Might help you to hang out on this year's secondary transition thread as well, as we/they've all just been through the whole process.
House is too small, so they won't accept he for that one. However...I have passed the tenant check, so I won't need to go through that again, and she has given me some 'inside information' on the two 4-beds that are coming up in the next few weeks.
So it's looking hopeful, to a certain extent.
The only issue is that my medical needs forms were considered at the last panel, they asked my (very slow...) GP for some further information about mine & the DC's issues, and they are going to decide whether I move up to the top band for bidding at the next medical panel.
If I move up, one of these 4-beds will likely be mine. If I don't, they might not be.
So as the first 4-bed will be up in either next week or the week after's bidding cycle, and the other the week after, it all hinges on when the medical panel next meets. Which I won't know until Monday.
<<Tears hair out>>
I REALLY need one of these two houses. If I miss out and then get put up a band literally just after they are let, I will be steaming angry, because it is unlikely that any more will he coming up where I need to stay for months, maybe even years.
I'm holding onto the fact that I passed the tenant check, because that's one hurdle out of the way!
Oh what a shame. It does sound like the wheels are starting to turn in your favour though. Will keep my fingers crossed that the right house comes up for you soon and they pull their fingers out re getting you put onto the top band.
I hate all this waiting around for panel meetings and then having to go through the rigmorole of trying to find someone who can tell you what the outcome was. I honestly think they spend so much time in these meetings, they actually forget why they are there in the first place.
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