Hi TelephoneTree my son has DS and turned five a few months ago. He started school in September at our local mainstream primary and is doing really well. Does your son have portage / SLT etc? Wasn't until ds started school I realised how much time was taken up taking him to various groups and waiting at home for the steady stream of portage, speech therapists and the dreaded HV!
Hello!! How lovely! We go to a local SAL group once a week and that's about it formally. The rest of the time is play groups, music groups, soft play and other bits and bobs. What sort of tasks should I be doing with him in the day other than memory games and flash cards / brill kids?? I find it so hard as have two others too.
Hi, congrats on your LO, I too have a son who has DS, he is now 12 year old, so advice from me may be a little dated other than a trick with the tongue. Some say it doesn't work but I believe it did for us. Tap it and it returns into the mouth. I used to say tongue away at the same time, and eventually I didn't need to tap. Obviously there will be times when it needs to protrude, with us it was when he sleeps and is ill but you know your own child and when a nd if it would work.
The one thing I found the most helpful with ds was Downsed See & Learn programme. It was easy to fit around older dd at home as you only have to spend maybe 5-10 minutes a day. The programme is great for speech and language skills and ds still uses the programme at school and in speech group.
We were started off by our SLT when ds was around 2ish. You used to be able to download from the website for free but there is a fee now or you can by the ready made (but pricey!) kit.
Telephonetree I have 3 adults with DS (all adopted) We are so lucky they keep us sane as we grow old Enjoy your LO Agree with devientenigma re tongue it does work. The main intervention we had was portage which did work. Both daughters went through MS school and both got 2 GSCE's (not A* I must add!) Good luck to you all
For a long time with the see & learn ds didn't really progress at any great rate. Intially it was really good for encouraging ds to sign more and is only really since pre-school that ds started with the picture / key word matching.
You're doing all the kinds of groups and activities I was doing with ds at two. We also used to go swimming lots which really helped with his muscle tone. Portage is a home visiting education service that helps children achieve their developmental milestones through play.
TelephoneTree the co-operating during activities was something that took time to develop with ds ( he was and still is very stubborn at times and has his own agenda about what he should be doing!)
One thing that really helped ( from portage) was building up the time spent doing learning activities and that ds would do at least one activity a day that was adult led from start to finish. For example if posting shapes in a box ds would do the first few then lose interest, so hand over hand we would finish the activity together.
Sometimes the activity would only be 1-2 minutes long, but over time this built up and we would do two adult directed activities a day.
Thank you for all your thoughts - very helpful! We are also using Brill Kids' Little Reader if that's of any interest to anyone. You can apply for a free / discounted copy if you have a child with special needs. Since we started it, DS has exploded with his signing and general expressive language and he really loves doing it.
Morning! The type of things we did with portage were:
- jack in the box (teaches action and reward) - press button toys (build hand strength) - lots of posting games (help with hand coordination) - lots of time on the tummy, looking at mirror (to strengthen core) - hiding things under a coloured scarf, but still visible (understand concept of things being hidden but still there)
We had to wait until DD was 10 mths old before we got Portage (LEA boundary issues), so I got a great book out of the library by Gymboree that gives lots of fun play ideas that help development.
sorry, just realised your DS is 2, not 2 mths (really should learn to read properly!)
We stopped getting Portage support when DD was 1, but the type of things that nursery /CDC recommend (DD is almost 3 are)
- matching games, i.e. photos of her favourite toys that she matches to the item - posting balls down drain pipes - threading balls onto a string - pictures of her friends doing things e.g. Walking, jumping, skipping etc. to help teach verbs. The nursery point to a friend and she has to find their picture & say /sign what they are doing
- she loves dolls, so we use them a lot in role play, e.g. Teach doll how to do something first & DD will usually copy.
Then the usual stuff to try and help strengthen her muscle tone, so taking toys to the local swimming pool etc.
Hi TelephoneTree Two seems an age ago, but do remember Portage encouraging ds to do simple jigsaws, threading, using role play for turn taking and language / signing skills, also lots of things for hand strength ( hiding little farm animals in playdough and ds had to pull them out)
Another thing was lots of sensory type stuff....playing with different textures....paint, cornflour, shaving foam etc.
If you look on the Downsed website they have two really good books for developing gross and fine motor skills.