Here some suggested organisations that offer expert advice on SN.
Group Honk/Hug Friday Thread. I Love Us!!(56 Posts)
Hope it is ok to start the Friday thread this week. After 2 bruising AIBU threads today, I thought it would be nice to start a sn love in (it is Valentines week after all!)
Pull up a beanbag, and grab some caring carrot juice (wine later)
Ds had a 24 hour ECG this week, and another visit to chest dr, lungs still very noisy, he is knackered poor boy. I have been going gluten free baking crazy, having done gf pancakes, mini victoria sponges and chocolate biscuits (or puddles as they could be more accurately described).
Hope everyone has had good weeks.
Happy Birthday to Silver Tadpole.
DDs off to a 'sleep' over. So she's being a bit tense and I'm just staying very quiet snd not engaging.
Have brought along some decent red for you all.
Sends Silverfrog and .
Have seen others verbally bashed on AIBU so avoid that section more often than not. Think MN need to actually now start moderating that particular part of the site with a moderator like they do on some of Femail and other sites. Another option that I cannot see them doing either is to remove that part of the site altogether (like the Guardian did with the GUT talk threads much to many people's dismay. I did enjoy their X Factor threads).
Inset today so we receive six days of half term rather than five.
Too many responses to catch up with.
Hope you all enjoy a week's break from school. It always seemed a double edged sword to me, nice not to have to rush anywhere, but the guilt that we never seem to do much fun stuff, and the fact I love it when they go back to school. Anyway, 'tis all over bar the shouting here. Back to school Mon and Tues.
I'm off out to a 50th birthday party later. How did we
I get so old? Boys are with dick, so I've been crocheting for little hugs. (That really makes me sound old!)
ps oh I did read that thread too and my heart sank. How depressing to think that's how we are perceived but I'm guessing maybe people I know think that about us now that our circumstances have changed.
thanks for the
on the upside - I lost 5lb this week . nicely in time to eat cake all weekend <in the interests of regaining strength, naturally >
agree something should be done re: AIBU. It's not good enough, really, to say 'this is an area where robust opinions are voiced'. The whole tone of the place is nasty, on the whole.
here's to a relaxing weekend
if dd2 makes it that far it will be a miracle. no I do not want to disucss the exact sequence of colour stripes which will make up Hello Kittys dress yet again
thanks, Polter. she is beyond excited <weary sigh>
am planning to delegate cake making to dh
Interesting views on AIBU. I'm coming round to the view that every single post should stand so that everyone can see who has posted what. Make people live with what they've posted and then everyone else can see their history and ten at least we'll know who holds unpalatable views.
Hi all, sorry to hear about crappy weeks, it has been quiet here chez sign... we were supposed to be going to see nanny and other stuff, but ds had reached blergh point (combination of explosion and deflation point IYSWIM) so we cancelled everything and hibernated for the week. He now has his equalibrium back, and has actually been doing some craft things, only 5 mins, but thats huge for him
bit sad that half term had to be a right off in order to get his head back and now we will be back to school, but I know you ladies get how that is.
and 'tum tiddy tum tum tum TUM!!!' I have arranged the next SW meet up, so this time next week I will have met a few more of you in the flesh as it were... altho that does sound like a naturist meet up....
anyway I am doing the 5 and 2 diet so I will just envy all of you with the wine and chocs
I love the 5 and 2 diet! I sort of did the 2 and 5 diet unintentionally, when dickhead left, but found I can easily maintain the drastic weight loss on 5 and 2.
I am too tired to post really, but thought I'd put my head round the door.
I have updated both my threads, but am too tired to type it all again.
Hugs and to those that need it, I know I do.
I've missed AIBU, not been on today.
We've had a bit of a blah week. DD's not actually been too bad at all, a little out of sorts as came home from school early yesterday ill and tired, but mostly been sitting on the sofa watching telly, which is a miracle in itself.
DD had her 'end of assessment' appointment at CAMHS this week, and was given a diagnosis of combined ADHD. We are waiting to be referred to the nurses for titration of Methylphenidate, hopefully starting in the next few weeks. I'm a bit meh about it, but her behaviour is having a huge effect on the whole family, so feel it balances out as being worth a trial to see how it goes.
Also, they are referring us to ADOS for ASD assessment. Not sure how I feel about that. It had been mentioned a few weeks back and they'd said they would try medication for six months, then review the ASD symptoms. I'm glad I'm not having to fight them for referral, but a bit scared that they've done it anyway without wanting to wait and see :/
LimboLil - I've been doing this for 6.5 years, now and it still hits me like a breezeblock, sometimes (like when I'm struggling through snow with the buggy because I can't let DS1 walk home alone, like his peers, as I mentioned upthread)[hugs]
5.5! Maths fail. Though that's just since diagnosis.
I'm here. Just. DD1 has had a very hard afternoon. She came home in a foul mood from school because her 3 of her boy friends did 'choosing' and chose the IPad (her latest best activity) and her one girl friend did 'light and sound room'. She wouldn't tell me what she 'chose' - she just said 'NOTHING!!!!'
She was in a terrible rage because she 'didn't do ANY writing ALL DAY'. I think the fact that she can't write is starting to get beyond frustrating for her. She 'writes' me huge letters - scrawls across the page of squiggly lines. Then she 'reads' them to me.
They're starting to use the IPad at school with her, to give her a way recording her thoughts, etc. Looks like we need to get one here too, somehow.
Lougle, woukd cereba help with a grant?
Cerebra are twitchy about computers/IPads, don't know why. They only do them in 'exceptional circumstances' and insist on a reference from the teacher explaining why it's essential and what is being done at school to warrant it at home, etc. Which the teacher is more than happy to do (she suggested it), but tbh, Family Fund is easier, because we meet the criteria and it's on their list of things they supply.
ha. I came over here to hide from aibu... sseems to have been hidden far too well!
feeling a bit queasy. too many maltesers due to a missed email and I have set off a chain of events to find out whether i am deluded about dd. If i am I will be only half deluded as ds proved to have asd.
lougle - Cerebra are giving grants which will pay for 80% of an iPad.
Just to add, they've recently (very recently) tightened up the references to one educational and one medical, but the income cut off is much higher than family fund. We would qualify for one for DS2 if we could gather the references and we wouldn't qualify for family fund.
And the information I got before Christmas from someone working for Cerebra is that they've been given some funding specifically for this sort of thing, recently.
Ouryve thanks, yes I read your thread. I know I'm not the only person that does this. My friend's dd has cp and she has dreams that she is up and about playing, and then wakes upon:-( v sad. In many ways I'm lucky, we have an older NT son and we manage things okay so he gets out and stuff, but even when I am doing something with him, there's a sadness that we are not all doing it.
I have dreams that DS2 is having a perfectly clear conversation with me. Even one of his teachers had the same dream, a while back and she said it left her feeling quite out of sorts, the next day.
That's interesting, Ouryve, their website still says:
"4. Can I apply for an iPad?
We treat applications for iPads the same as we would one for a computer and will only fund iPads in very special circumstances. Your child must already be using an iPad in school as a communication aid."
DD1 isn't using it as a 'communication aid' in that she is verbal, she just can't record her thoughts permanently in the mode of writing yet, so they are starting to introduce the Ipad in that sense.
I think recording thoughts can be considered a communication aid tbh. Writing is communication.
Yes, I know...but I'm not sure they intend it to be read as that, and she isn't using the IPad every day, etc. Family fund don't have this restriction.
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