Here are some suggested organisations that offer expert advice on SN.
Feeling a useless sn mum horrible self pity alert(30 Posts)
Hi sorry everyone my situation isn't nearly as severe as some of you but I feel a total failure .So many of you do so much with your dcs and all I seem to be doing at the mo is leaving dd playing iPad .i just feel such a failure at being a sn mum having two children on the spectrum is harder than I ever imagined sorry for rant but all friends in real life have moved away and dp has depression and agoraphobia thanks if you've read this far
We are so competitive! No, I'm the most useless, not you, you are merely slightly inadequate!
There are no saints here <picks up halo from around ankles and uses ears to keep it up>
DS came home from school and had my iphone, he had tea and had my iphone, he went bed with my iphone. Its been peaceful, NEEDED peace x yes it was a crap mum day
Hi autumn I'm crap mum too. Especially when things are going
shit slowly and nobody seems to want to help, and decisions have to be made.
It can be very isolating. Especially with the "friends" FB statuses always seeming to be about what their dc can do.
But what you mustn't forget is how hard we
with SN children all work to even get the vaguest resemblance of normality. Often our friends and family don't see all this, and if you put on the same front that I do, some never will see it.
I seem to have one battle after another to get help,
my current one is S&L, and it is draining. But we can do it, however bleak it seems. Always hold onto that scrap of hope that things will get better.
My favourite quote of all times is "life isn't about waiting for the storm to pass, but learning to dance in the rain"
Ps, my dd loves the iPad! And rarely does much else after school.
Morning everyone just had sleepless night thanks to dd2 also ds is being bullied n school .Bliebird love the comment about Facebook I know some very competitive mums on there everything's what their children have achieved
I think you will find it is I actually.
Seriously, give yourself a break x
What hazey said re being knackered, worried and overwhelmed.
It's not as if anything can prepare you for this - if we feel lonely it's because we are very much alone. I've never seen a single image of SN motherhood depicted in the media, advertising, stupid FB motherhood photos etc.
Only ones I can think of are in films and they're generally depressing.
No, no I AM USELESS SN MUM
Actually, I don't think I am ( although I have had my moments in the past!) I think I am knackered, worried and overwhelmed sn mum.
Be kind to yourself.
Yes that is what mine is like, really fab but sure I am at present far too miserable,
hope you go along to yours, when I do go I always feel,better, it's just making that effort when all I want to do if both boys have gone to school is go,back to,bed!
I haven't been to my local group as the email said that they are a very positive group and I am not sure that I am positive enough.
This thread has lifted my spirits, I am so convinced that I am such a bad SN mum, I didn't even get to the lovely SN supprot group for weeks on end as am so bloody useless and tired!
Star I love your post.
autumsmum you are not alone, and you are definitely not useless
This post has been just the medicine I needed today. Thank you. and to you all, again.x
I don't post much here (DS is 3; probable Asd dx), and I don't really have any advice but your post struck a cord with me, and I thought I'd add my voice to the "it's normal, we all feel like that sometimes" opinion. I know I do! My DH often leaves the house at 6.45 am. That's him off to the gym, then work, with a lunch break for an hour, adult conversation with colleagues, gets to go for a pee with the door shut etc.
After my broken nights sleep (thanks unsleeping DD), get 2 DC up, change nappies, do breakfast for DC (mine comes later when they aren't shouting because they are hungry), somehow get a shower without DC coming to harm, get us all dressed, tidy up after breakfast, get DD (11 months) down for nap, put washing on, unload/load dishwasher, tidy random crap left from the day before, make beds/ open curtains etc... I've probably forgotten a few things in there too. That's all before we even think about going out! I don't mean this as a DH bashing rant (he does do loads) just that I sometimes have to remind myself of how many million things I do every day and that i can't turn every moment into a learning experience. And sometimes you just need a sit down, have a and let the kids watch tv/ipad for a bit. It won't kill them and it'll keep you sane. Please be kind to yourself. And drink more
Oh oh I'm doing foods!!! I'm doing something!!!! He ate a veggie hot dog today! Have discovered its all about texture I think.
Activity and insights? I'm a BRILLIANT SN mum!
I'M THE USELESS SN MUM.
I work in this field, I have an expertise in a small corner of it.
Do you think my children get expert level intervention every day? Do they hell!
As starlight says, I go through bursts, where I set goals and aim for them (e.g. broadening DS's range of foods is one at the moment). But I can guarantee that I will stop once we get to that much.
I am coming round to thinking that the best advice I can give the parents of children that I see is this: hugs, cuddles, loving smiles, acceptance, couch days for when the rest of the world is too much.
I'M USELESS SN MUM
so tired this month it's like pulling my own teeth
Firstly you have 3 DCs to get up, out, fed, watered, clothed, at school, at appointments, at friends, at whatever. That's masses. Second you have some additional needs to deal with. But they also have their own things to cope with too - quite often my DS is so wiped from school that there is no use trying anything with him, apart from the 'normal' stuff like food, homework, bath bed.
Like everyone else, I have bursts of energy and bursts of 'doing' but then I have bursts of ... nothing.
And do you know what? Yes our DCs need more input but sometimes that input just consists of living.
Oh yeah - AND I AM USELESS SN MUM...
Thanks everyone starlight I've seen you help pele a lot and bluebird I know you've had a really tough time recently
<stands up and shouts, "No, I'm Useless SN Mum" in manner of Kirk Douglas in 'Spartacus'>
Out of hospital now but I just feel utterly utterly drained and I'm probably not doing amazing wonderful interventions with bluechick but to be honest it's all I can do just to feed, change, medicate, transport her to appointments and cuddle her at the moment.
Give yourself a break and have a
Thanks everyone I also have a dd who is fourteen and going through the angsty stage all black hair and heavy metal .portage worker is backing special school for little one as she said a failed mainstream placement would add to the family stress
Ipad is educational, it's always being recommended for children with ASD. Download some recommended apps for ASD and you have been very proactive.
Hope that makes you feel better, I have periods where I feel as if I am wading through treacle and everyone else is living a wonderful life. It's normal and sometimes we have to all compromise to keep going.
I can only repeat what the others are saying. Long baths are my treat. It sounds really sad but I set myself up with Mad Men on my ipad and lie there. Then I get out, and try and get an early night.
Otherwise it is a very large glass of wine or 2!
Do what makes you feel better and we put so much energy into sorting things out for our kids that leaving them for a bit on an iPad or computer is the least of our worries!
A life less ordinary.....chart your own course and try not to feel guilty about anything. We do our best.
Oh and don't be fooled by posts on here. Lots of us have ideas and report things that we have done. Doesn't mean we spend all our time doing them though.
It doesn't matter if you have or haven't, but the point is I LIVE here, which means I can't possibly be furthering the treatement/education of my children, despite it being after school and them not in bed.
I have ideas, I do things, I have bursts of activity. It makes a difference. Sometimes I do nothing at all for days on end. Sometimes it means my children are engaged in very unrpoductive activities, sometimes they surprise me and their boredom leads to something amazing or interaction I didn't think they were capable of and I didn't engineer.
I tell myself every day that I will do better tomorrow. Sometimes I do, mostly I don't.
But each day is a new day, and a new opportunity, and life is life. Love your children. That's your first goal. If you achieve that you have done more than 50% of your work and you can be proud of yourself.
You can't be Crap Mum. I'm Crap Mum! Honestly, we all feel like this, well I do frequently and one asd was hard so huge respect to you with two and very little support. Give yourself a break. You are amazing and your children and partner lucky to have you.
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