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Does this phrase mean anything to you?

20 replies

CPtart · 23/01/2013 14:09

I have a 9 year old nephew who has always been slightly "different". He is an extremely bright boy and apparently on the gifted and talented register at school but has always seemed slightly awkward in social circumstances and is often the one on the perimeter when we get together as a family and all the cousins play.
It is becoming increasingly apparent as he gets older that there may be issues, wanting to go home early from days out, school refusal, separation anxiety etc, and often completely over the top reactions when things don't go as he wants, often over seemingly ridiculous things.
At a recent gathering he moaned, whined and got completely over wrought for nearly two hours over the fact that the pizza house had no pineapple to put on his pizza! My poor SIL who spent the whole night trying to cajole and pacify him was overheard to say "do you need to go into the toilets with dad to focus?"

To parents of children with ASD/Aspergers does that phrase mean anything to you? It's quite an awkward situation as almost every occasion now results in some incident with him leaving us all silent and almost embarrassed, but don't want to ask SIL if there are problems because surely they'd have explained to us if that was the case?

Grateful for any suggestions and advice.

OP posts:
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bjkmummy · 23/01/2013 14:11

It's not a phrase I would use personally but if my son was becoming overwhelmed I would take him out for a short while to help him to calm

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coppertop · 23/01/2013 16:59

It sounds as though SIL was trying to think of a quiet place where he could go to calm down and chose the men's toilets.

I don't ask mine if they need to focus, but might ask them if they needed to go somewhere quieter for a break or to calm down. Presumably "focus" is the word that your SIL uses for this.

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Catsdontcare · 23/01/2013 17:04

Not a phrase I would use it might just be her way of giving him a warning.

It doesn't necessarily follow they would discuss his issues with you. No one in our family is aware of ds's diagnosis.

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zzzzz · 23/01/2013 17:26

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Message withdrawn at poster's request.

TheLightPassenger · 23/01/2013 18:14

sounds no more and no less like she hoped going somewhere quieter with his dad would help him calm down. you can't read any sort of diagnosis into it tbh. rather than ask SIL if he has any "problems" it would be more helpful for you to ask whether certain types of outings tend to work better with him - e.g. would a buffet where he sees the food be less stressful all round.

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StarlightMcKenzie · 23/01/2013 20:33

DS is sometimes removed from the classroom to get 'ready to learn' if he's a bit off the wall.

Are you worried that 'to focus' means some kind of punishment?

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coff33pot · 23/01/2013 21:18

as to why to just cant ask your SIL outright.....

Kids SN or NT can need chill out time. It could well be a "code" between them when out that his behaviour is awry and its a hint to go calm it.

Why get embarrassed child is upset and all children can get upset. Maybe there is something going on and she doesnt wish to disclose or.......due to embarrassed reactions from others has felt impelled to keep quiet?

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coff33pot · 23/01/2013 21:19

sorry should read I am confused as to why you just cant ask your SIL outright :)

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troutsprout · 23/01/2013 21:56

Just ask her if there is anything you can do to help at get togethers to make it easier for him.
How horrible for her to have to contend with the silence and embarrassment of others at these occasions. That's a tough gig ( not one I'd be up to tbh)
I think it's less important what he 'has' or whether or not they have decided to share ( who cares?).... More important that he and his parents have the support of his family.

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Cornsyilk99 · 23/01/2013 21:59

it was probably the only quiet place for him to go in the restaurant
what did his dad do to help - why don't you ask him about it?
(I assume his dad is your brother)

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Catchingmockingbirds · 23/01/2013 22:04

Why is it a given that they would they explain to you any problems they're having?

I don't say that to DS but if we're out somewhere and he's not coping I'll take him somewhere quiet like the bathroom to help him calm down and reorganise his thoughts so he can explain what's wrong and will properly listen to me explaining situations to him. I suppose it's him focussing in a way, it sounds like it's just a word your SIL has chosen to use for going to help him calm down.

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CPtart · 24/01/2013 08:13

Thanks for your insight.
Just to clarify, my DH is SIL sister and although I would be more than willing to ask them if there are any problems, they are a family that doesn't talk openly and my DH is adamant we just leave things be and don't interfere.
It is awful for then to have this silence and personally I feel things things would be better all round if we could have the conversation and offer to help in some way. I didn't mean to insinuate I was embarrassed by him, just that I really feel for their obvious discomfort when situations arise.

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zzzzz · 24/01/2013 09:50

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inappropriatelyemployed · 24/01/2013 10:28

I think they have decided what is best for them and you need to respect that. I am sure you are trying to help and it is very kind of you to think of them, but families need their privacy. If their son has got special needs, they might have entered a very stressful world of trying to assessment and battling for provision. They might just want to live as normally as they can without talking about it.

As zzzzz says you can offer help and be a good friends whether they confide in you or not (if there is anything to confide)

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troutsprout · 24/01/2013 10:32

Cptart you don't need to have 'the conversation' ... Really you don't . They may not even be able to have it themselves yet.
You obviously want to help . He is one of your people... Just roll up you sleeves and get in there. :-)

1..Distraction.... You may be able to stop it escalating...someone he doesn't see too often may be able pull this off easily. Ask him something about a subject he is really into.
2.See if you can solve the problem for him
3.Ask your sil / bil if she needs a hand
4.Make it your absolute mission to fill the silences at the table

Even if you failed miserably at all of the above ... I would probably love you forever that you cared enough to try.

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Catsdontcare · 24/01/2013 10:59

I agree you really don't need to "know" anything to be able to help. Just be kind, sensitive and inclusive. I can assure that I don't feel that things would be better all round for the extended family to have a big discussion about my child and I would resent being forced into a discussion. I do discuss his diagnosis with close friends but I don't feel obliged to share it with everyone.

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StarlightMcKenzie · 24/01/2013 11:04

Knowledge doesn't affect ability to help. Honestly. My DS' teachers knew everything and they were as much use as a chocolate teapot.

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MareeyaDolores · 24/01/2013 11:05

I dunno. My gut feeling is the same as coff, I'm confused, why not just ask SIL?

Yes, there's a role for
-allowing privacy
-respecting people's right to be in denial
-accepting that parental responsibility includes the 'right' to do it your own way
-reinterpreting public "tantrums" as an adult unreasonable-expectations issue

But you're the little lad's auntie, and yes, it does look to me like there's probably some sort of issue. Though not necessarily one with a "name" Wink. It also looks like you're one of the few people who isn't going to say this difficulty is all due to "naughtiness" or a "parenting problem". Plus, based on my own family and in-laws Grin, multi-generation 'quirky' families can make for slightly difficult communication about this type of thing, so your SIL might welcome (tactful) straight talking Wink.

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MareeyaDolores · 24/01/2013 11:08

The practical suggestions about how to handle family gatherings are great. I think you were doomed from the start with the latest outing. Pizza parlour + grandparents + any minor hitch = complete meltdown, ime

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coff33pot · 24/01/2013 11:15

Sorry but in your main post you say
It's quite an awkward situation as almost every occasion now results in some incident with him leaving us all silent and almost embarrassed, but don't want to ask SIL if there are problems because surely they'd have explained to us if that was the case?

Then in your next you state that they are a family that doesnt talk openly Confused

I dont mean to be awkward but its a little bit contradictory as if they are a reserved family then she wouldnt have disclosed anything would she.

And it does say that it is HIM that is leaving you all silent and almost embarrassed.

I would still approach her by the way of help as in breaking the ice before the silence comes. Laughing it off and carrying on with conversation as if nothing had happened. Build a trusting relationship with your SIL so that in turn she may just confide in you if she needs support.

Maybe choose different forms of meet up rather than big family dos something you know he would enjoy that relaxes him. A lot of kids SN or NT hate crowds, chaos and busy places.

But others are right you dont need to KNOW anything to be supportive. :)

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