Here some suggested organisations that offer expert advice on SN.
A short story by DS(35 Posts)
The Journey to Axe Island
the journey to Axe island was so tiring, yet Thom and Elenna Were buzzing with excitement not knowing what was to await them.
Whenever the friends were together they knew with their skills and courage, anything was possible. As they tiptoed to the thick, dark forest the deadly silence filled their ears. As they shivered around the corner the mysterious catbat beast known as scar was ready to pounce. Tom and tummy's were filled with butterflies
Out of the corner of their eyes, a black figure swooped in and out of the trees. Scar! The brave friends stood still with fear. Worried yet excitedly, they crouched. around the beasts neck hung the golden key. It was shining in the moonlight. Elenna used her wicked archery skills to shoot the arrow at scar to free the key. Their hearts were beating like drums. Suddenly, scars beady eye flickered, had scar seen the friends? They would have to go different ways for their devious plan to work.
Thought I would share it because I thought it was brill seeing as this is his first ever real story on paper instead of imagination and reality mix up
He still has major issues with writing but this was produced on clicker 6 that I mentioned before. Thanks to that he is now reading every day at school and has gone from spelling nothing to passing his 50 word target to 86 spelling words
All in 3 months!
I will bow out again now too much going on in RL so random postings at mo hence silly oclock replies
Hope you are all ok and hugs to those who are not xx
"very flexible" "double-jointed" and joint pain screams hypermobility to me. My ds has a dx, I had years of unexplained joint pain as a child/teenager (unable to walk at times, constant sprained ankles and wrists) and realise now I have it too. There is a long thread/s about EDS/hypermobility, might be worth a read?
Cross-posted with moose
I too felt awful when ds was dx with it, he'd been complaining of pain and I'd been quite dismissive
I had never heard of it when ds was dx, but suddenly so much made sense. I went through years of tests as a child, numerous blood tests which were always problematic. Now I realise that this can be because of the hypermobility as can coordination problems and problems with anaesthesia... It was a real lightbulb moment.
Me too Polter, local anaesthesia doesn't work on me (or ds2), no-one can ever get blood from me (or ds2) due to collapsing veins and I now suffer the painful consequences of all the clicks, locks and subluxes I had constantly as a child.
Having traced it back, we can go back 4, possibly 5 generations on my Mum's side of the family and clearly identify people who have/had JHS.
Not sure about pushing for an assessment for an ASC though as she is so borderline. But if they keep on her at school then I will if that is what it takes to make them see.
She would be a hard one to spot. She has friends well 2 main ones. Has no crowd issues and quite happily went to camp and a school disco all by herself.
But she is also maths mad, art mad and great at it but its things like being so disorganised, mad on minecraft and portal. How many girls do you know that is craving to own the portal gun replica for her birthday only £200 and you cant do anything with it! but that is her desire. At 12 and starting her periods recently etc I would have thought the hormonal changes would have set in. She does hair and likes to look nice like her big sister but really that is as far as it goes.
Oh she is also the worst eater in history. Not a single vegetable or fruit.
Being asked to do too many things at once has lately got her in a state too. Its like its just appearing but I am thinking its all this senior school stress that is doing it.
Now I got two kids knuckle and finger cracking ahhhh! Only DS cracks his neck too
oops crossposted with all of you as I forgot to press send!
Cant get appointment for today or just with the nurse anyway which would be more than useless and would have to still make a doc appointment.
Got to ring again tomorrow and see if any slots available. I got a particular GP in mind so it worth hanging on for x
Goodness Coff, she sounds just like ds2. He has traits, but not enough for a dx, is totally disorganised, currently obsessed with minecraft and loves maths and art!
He doesn't have a best friend, but is such a sweetie that all the other kids like him and are happy to include him in their games. There's a little group of boys with similar traits in his year that hang around together and he tends to be with them.
Interestingly at his OT appointment they asked him lots of questions about his organisational skills and seemed to be expecting him to be disorganised. They also asked about how easy/hard he found it to learn the time, days of the week, months and seasons and seemed to expect the answer that he still struggles with all of them, which he does. I thought at one point they were going to suggest dyspraxia/dcd, but they didn't mention it - though I suppose they might put it into their report. I came away wondering if poor organisational skills are a known factor in JHS.
Hope you manage to get hold of the good GP tomorrow.
Gosh she does sound similar! Well her best friend is a year younger than her, very quiet, similar disposition and like DD who is cornish doesnt have the slightest touch of accent just very precise volcabulary and a "teacher like" tone lol Also mad on minecraft, likes swimming does not like going out and has to be pushed out the door but usually ends up here or portal or DD there yep on portal or minecraft. They even watch live stream at 6pm! madness!
DD is bright but its not just organising its also common sense there is none lol. She would walk all the way to school not realising that the weight of a bag of books isnt there because she has left it at home! and rather than ring from school she would walk ALL the way back!
She is great though and funny and good sense of humour just a tad of a worrier too x Your DS and DD would probably get on like a house on fire
Hi Coff - I work at Crick Software, the makers of Clicker and would love to be able to share your Ds's writing in the success stories section of our website. It would be really great to share this with other parents who want to see how Clicker is being used.
Email firstname.lastname@example.org to let us know!
Really? oh! I will have a think about it as its quite a public thing. Could boost DS self esteem maybe seeing his story on the net
Although I am hoping they still have it in school as his laptop broke this morning so he wont be using clicker at home any time soon it really is one of those years! ahhhhhhh!
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