My feed
Premium

Please
or
to access all these features

Here are some suggested organisations that offer expert advice on special needs.

SN children

DS wanted me to check if I am being mean

25 replies

yawningmonster · 30/12/2012 07:27

If your children are capable of doing the following....
get their own drink
get something out of fruit bowl to eat
walk down to bedroom to collect a wanted item
put a cd or dvd on
do you expect them to or do you do it for them?
I am happy to pour ds a drink if I am in the kitchen and ditto any of the other things if I am actually close to said item then I haven't got a problem with doing it.
Currently (keep in mind ds does have some special needs but as I said he is completely capable of doing all of the above) ds will holler for me to come to him and then demand I do something like those on the list. "MMMUUUUMMM!!! (I am at other end of house) I walk up the hallway and say "Yes DS" "Drink". "Yes, Ds you can have a drink" "You get it" "You are able to get it DS "MASSIVE MELTDOWN..."You are right there, other parents do things for their children, it's not fair, I'm thirsty, PLEASE! PLEASE! PLEASE!

So are my expectations too high or are his?
I do know that at times he gets overwhelmed which is why I am asking but getting me to do things for him is his default setting so hard to know when he is all tapped out and can't perceive his own ability to do it or when he is just milking it.

I will list this in Special Needs as well but wanted a range of opinions.

OP posts:
Report
fourbears · 30/12/2012 08:04

How old is he? I've got a 12 year old ds and he's obviously capable of doing a lot now and can certainly cook himself a simple dinner. When he was younger, I probably get him a drink, for example, half the time and encourage him to get it himself half the time. I wanted him to feel cared for but also able to be independent and self-reliant and not think his mum is just his personal servant! Tell your boy that looking after himself a bit is good for his self esteem!

Report
yawningmonster · 30/12/2012 08:08

fourbears that is the approach we are taking, that we are trying to let him be a big kid who can do things for himself and make sure that we have enough energy left to help with the things he can't do. He is 8 but about 2 years delay.

OP posts:
Report
lougle · 30/12/2012 08:40

As long as there is no question about whether he is allowed to do those things, then I'd expect him to do it himself. If there are times that he is not allowed to put a DVD on, or take from the fruit bowl, etc., then that might be more confusing.

Report
yawningmonster · 30/12/2012 08:45

lougle this is all in situations when it is clear he is allowed but doesn't want to do it for himself.

OP posts:
Report
fourbears · 30/12/2012 08:54

I think that sometimes it's not worth getting into a (verbal) fight about things. In the past we've had the situation that we get into an argument agout it. You get it, no you get it etc. I'd get very cross and the whole situation would escalate and I'd just think I should just have got him it, it's not worth all this. I think if you have independence in mind as a long term goal and let it slide occasionally day to day if he seems particulary adamant maybe it's better for the relationship overall. Maybe say I'll do it this time, it's your turn next time, ok? Kids eh?! So much juggling and balancing. The hardest job!

Report
TheNebulousBoojum · 30/12/2012 08:59

I've posted on your thread on the main boards, I think it's a good idea to encourage as much independence as possible within his individual limits.

Report
Ineedmorepatience · 30/12/2012 10:08

I agree that dc's need to gain independence but in our house I find that this is exactly what causes aviodance behaviours, if Dd3 asks me to do something and I say no you do it she would do the same as your son. In fact if it was around getting a drink or fruit she would probably just go without and moan very loudly that she is hungry/thirsty.

I would make her ask nicely and give loads of praise when she does do things for herself.

Also remember, if your Ds is delayed by 2 yrs he is like a 6 yr old and you wouldnt expect a 6 yr old to be that independent.

Choose your battles yawning dont be his skivvy but he will send you loopy if he is melting down all the time.

Good luck Smile

Report
porridgelover · 30/12/2012 10:14

yawning I also get this partic with DD1 (undiagnosed), but also with DS (SN) so I dont think its uncommon.

I dont think your expectations are too high; if anything I think you would be doing him a disservice to be his skivvy.
Its appropriate for a young child to ask parents to fetch and carry for them....not so much for a teenager.
I look on it as a skill that they have to learn; just like putting on shirts, using the loo, packing a school bag.

I also do as fourbears suggests: when he/she do things for themselves (esp if they do it spontaneously) then I praise them. They love this. I try to keep my mantra as 'catch them out being good'!!!!

Report
WeWilsonAMerryChristmas · 30/12/2012 11:38

Drinks is tricky because he can get water out of the tap or a yogurt drink out of the fridge, but he can't pour himself a milk if it's a full 2 litre bottle IYSWIM because it goes all over the place. So we don't have a blanket rule. But for everything else I would say 'why don't you get it yourself' and if he said 'it's too tricky' (general get out clause) I would then say, 'come on then, let's do it together' and give him a bit of help/guidance - with the aim that next time he'd do it himself.

Or I'd say 'I can help you in 5 minutes but if you want it sooner than that, go and get it yourself' which gives a motivation but doesn't escalate or leave him hanging either.

Report
zzzzz · 30/12/2012 12:27

This reply has been deleted

Message withdrawn at poster's request.

zzzzz · 30/12/2012 12:29

This reply has been deleted

Message withdrawn at poster's request.

WeWilsonAMerryChristmas · 30/12/2012 14:04

Blush I really should have worked that one out, shouldn't I?

Report
JsOtherHalf · 30/12/2012 17:51

Would a topster help with the milk? www.topster.co.uk/home

Report
zzzzz · 30/12/2012 19:23

This reply has been deleted

Message withdrawn at poster's request.

saintlyjimjams · 01/01/2013 08:22

I make severely autistic ds1 (13, non verbal) get his own drink, clear his plate, take stuff to the table etc. If he's eating he's started trying to shout at me to get it rather than get up himself but if I sit fast he will usually eventually get it. I suppose if it became a huge issue a jug of water on the table would work.

I also send him off to fetch things, but he sometimes gets a bit lost in that case so might need my help sometimes.

In ds1's case independence skills are the most important part of his education really. He's always going to need 24 hour care so being as independent as possible within that boundary seems important

His 2 NT brothers try to avoid getting their own drinks as well. Ds3 I help because he can't reach the tap.

Report
yawningmonster · 01/01/2013 08:26

thanks jimjams yes independence is my aim...I don't know if ds will ever live independently but I do hope I can equip him to be as independent as he possibly can be....just a shame that this is contrary to what he desires as I think at least at the moment he would be happily dependent especially on me.

OP posts:
Report
saintlyjimjams · 01/01/2013 08:28

Has made me think. We regularly visit an outdoor cafe where he always wants sauce. He used to not be able to operate the sauce dispenser - needs quite a bit of welly and coordination and often queuing etc as well. So I used to always have to help him. Just realised I haven't done that in months. He'll bring it back for his brothers as well.

I suppose i treat him the same as his brothers - if he physically do it I expect him to.

Report
yawningmonster · 01/01/2013 08:32

thank you jimjams it is funny how sometimes things creep up on you and then one day you realise wow that behaviour has changed and I hadn't realised until now...I love those moments.

There is a 5 year age difference between my two and I sometimes have difficulty knowing what you would normally expect at certain ages even without the autism thrown in to confuse me further.

OP posts:
Report
saintlyjimjams · 01/01/2013 08:47

Ds2 would always prefer to have me do stuff for him, so I am really having to hang back with him (he 's NT but always been like this!). I see it as a personality trait in his case. No SN at all. He's off to secondary school in sept do really needs to be able to open a bag of crisps himself lol.

Ds3 was born fiercely independent so in his case it's more getting him to accept help when needed that is a problem.,

Report
yawningmonster · 01/01/2013 08:56

always a challenge...I do wonder if ds would have the dependence trait with or without the autism...I suspect so...he just can't see the point in doing it if someone else will...he would still sit in a stroller to be taken anywhere if I let him away with it!!!

DD seems to be somewhat in the middle and flips between dependence and independence ....though things are a bit clouded with toddleritis at the moment.

OP posts:
Report
sazale · 01/01/2013 12:37

My dd 14 asd (very complex and demand avoidant) told me that she asks me to do things so she can make use of me before I die Grin

She will text me from her room to get her a drink (which I don't) as her legs don't work!!

Report
bigbluebus · 01/01/2013 18:16

Sazale Your DD sounds like my DS (16 HF ASD), although he shouts from his room rather than texting - as my phone is not usually near me when I am in the house, so he would not get an immediate response. He is a firm believer in "why do something yourself when you can get someone else to do it for you"!. He is more than capable of carrying out most tasks, but has always had this lazy streak. I think it is partly due to the fact that his older sister is severely disabled so we have to do everything for her. We have always been careful to teach him how to be independent, but sometimes it is just quicker to do things for him otherwise we'd never get anywhere!

When he started school, his TA called me aside one day and asked if I could put him in a polo shirt instead of 'formal' school shirt on PE days. When I asked "Why?" she said, "because he can't do the buttons on his shirt, or tie his tie". The truth was, that DS had learned to do both tasks (except the collar button) but had told the TA he couldn't do them so he could get her to do them for him. I soon put her straight - but it was interesting to see that he had quickly sussed that he could get away with being lazy at school too!

He is the only child I have ever heard say "It's not fair that I have to walk when DSIS has a wheelchair". He walked everywhere from the age of 2 as I could not push a wheelchair and a buggy at the same time!

So my advice to you OP is persevere with getting your DS to carry out any tasks for himself that you feel that he is capable of doing.

Report

Don’t want to miss threads like this?

Weekly

Sign up to our weekly round up and get all the best threads sent straight to your inbox!

Log in to update your newsletter preferences.

You've subscribed!

KOKOagainandagain · 01/01/2013 18:33

DS1 has similar problems - imo they really are not being 'lazy'. DS1 can pass for normal but is unusually passive (according to Daphne Keen). Therefore he doesn't get himself a drink when thirsty or food when hungry and is genuinely distressed that I am not pre-empting and meeting his needs. He finds it hard to understand increasing independence as the child gets older as these skills of independance are not automatically acquired. As far as he is concerned it is an indication that his parent no longer loves him if they do not get him a drink and I have to explicitly teach him otherwise.

Report
yawningmonster · 01/01/2013 19:13

keeponkeeping I think there are huge elements of that going on for us...ds feels adrift when we ask him to take increasing responsibility, he takes it personally. It is almost like it is nothing to do with the fact he can do it and more about the fact of why would we not want to do it for him when we did do it when he was 1 or 2 etc....the way he goes about asking now that is something else and is drilled in. I think though that while it is absolutely reasonable and necessary for ds to increasingly become independent it is also very frightening for him as he hasn't got the understanding of why independence would be desirable.

OP posts:
Report
sazale · 01/01/2013 19:18

He is the only child I have ever heard say "It's not fair that I have to walk when DSIS has a wheelchair".

That is exactly the sort of thing my dd would say!! My mum has really bad osteo arthritis and has just had a knee replacement. Whilst out with my dd she refused to walk (as she always does) and said to my Mum that my Mum could only walk further than her as she had a walking stick!! Mum ended up giving her the walking stick so that she would walk!!

DD does have muscle tone/hypermobilty problems with her legs and feet that does cause discomfort but tied in with demand avoidance and SPD any outing is a nightmare. In fact she's that bad that we recently got awarded HRM!!

Keepon, I think you raise some valid points there and I think with dd some of it is demand avoidance, some of it is failing to plan for it, some is teen laziness and some is not wanting to grow up.

Report
Please create an account

To comment on this thread you need to create a Mumsnet account.