dla forms help please

[Crawling]

I am waiting to receive the forms but while Im waiting I plan on writing down dd extra care needs like it requires two people to brush her teeth could you help me compose a list of things I need to watch over the next few days to record dds needs plase?

Teeth brushing
Eating
drinking
toilet
and any dangerous habbits which require her to not be left alone.

Any suggestions of what else I should include greatly appreciated.

[Lougle]

Cerebra Guide to DLA

You need to think of everything you do, throughout the day, from the moment she wakes in the morning, to the moment she sleeps at night (for daytime needs), and the moment she goes to sleep until the moment daytime starts (for night time needs).

What do you have to do? - Think carefully. Include things like reassuring DD before you put each piece of clothing on, or restraining her, or singing to her, or whatever. Include things like particular order, particular items, particular changes you have to make.

Why do you have to do it? What happpens if you don't do it?

How does this differ from other children of her age?

[Crawling]

Thanks both my dp will download the cerebral guide tomorrow (I'm on phone) these forms sound so stressful.

[Crawling]

Those cerebral forms are a god send I thought dd didn't have much nighttime needs but after reading them I realised she does have quite a few

[Crawling]

Also is dla like tax credits do you need to really every year?

[OwlLady]

I would try and get some professional help filling it in. Is your daughter under anyone (like social services, portage -sorry don't know how she is, a special needs school or nursery, a specialist health visitor?)

[OwlLady]

no it's usually awarded for three years

[Crawling]

Dd sees pediatrician ed psych salt and portage.

[CatchingMockingbirds]

I'm filling mine out today too, I've to fill it out and the lady at camhs is going to fill some out too to support it.

[OwlLady]

ask your portage worker, she will either be able to help or know of someone who can :)

[cheekkatb]

I applied when my son was 4 and we were awarded DLA for 3 years and reapplied when he was 7, and it was awarded until his 16th birthday.

[Crawling]

Can I ask can I put that because dd is still in nappies she requires extra baths so she doesn't get sore and that because she smears her feaces she sometimes requires a second bath?

[OwlLady]

yes, you can. She requires 24/7 helps with all her personal care needs. Bed changing (during night) bathing, toileting etc Very important to state she is doubly incontinent

[Crawling]

Thank you owl lady I usually have to change her happy at least once through the night but when asked if she had night time needs I didn't think about her nappy changes.

[OwlLady]

do you need to check on her during the night? does she needs 24 hour supervision?

all is important to put down, stripping beds if wet/smeared important too

My dd is severely/has epilepsy etc but sleeps rather well whilst on school term, but it still doesn't take the need away for me to check or change her in the night, strip the bed and bathe her, stay with her if she has had a seizure, be alert the whole night if she needs me. Do you know what I mean? It has to be the worst day noted on the form

[Crawling]

I see owl lady thank you its so easy to forget how much you actually do. I am going to fill the form inMonday at the citizens advice my portage worker said they usually help out with that but I have been thinking about each question and sticking post it notes on to remind me.

[perceptionInaPearTree]

The length of award varies, so far I have completed my dd's forms at 3, at nearly 5 and at nearly 11. Her new award runs out when she's 16.

Remember there is no room for anything positive on the forms. You need to use powerful language to make a stark comparison between your child and NT children the same age. I always give a blow by blow account of all her care needs.

Do you have any other children? I find it helps to compare my dd with her younger NT siblings, who both have better danger awareness than she does (and one is 3!) and how the 8 year old is independent with her self help skills while dd1 (11) still needs a lot of help to eat, to get dressed.

When outside, think about whether she needs restraint (restraint can be just a hand on her arm for example).

[Crawling]

also you know the section to be filled in by someone who cares for the child would dds portage worker be acceptable?

[OwlLady]

yes, she would be fine

[Crawling]

thanks again owl lady my god I don't think I would have got through the last few months without mnet a huge huge hug to all who have helped me on this thread and any others.

[OwlLady]

it's very isolating when you have a child with special needs, this is where places like this come into their own, imo. Hope it all goes well