DS (he has ASD) was at SALT for a short period of time but I also done a lot of work at home with him and would look up certain tasks, different approaches etc on the Internet and do them with ds. I'd obviously tell the SALT and she was very impressed but then eventually said she was going to sign DS off SALT because I offer him so much support at home.
DS was also under the support of camhs until very recently when again I was told that they were very impressed with all the work I done at home with him and they felt that they couldn't offer us anything that I couldn't already offer him. They said that if I wasn't so proactive, educated (I've never even been to one ASD course ), and on the ball with regards to DS and his support they would be offering me lots of support and different services.
I mentioned all the things I still struggled with, his very restrictive diet, his limited social skills, meltdowns and obsessions (like how he obsessively claws at his skin until it bleeds) but the reply was 'oh but you'll figure something out, you're so great at managing him.'
It's a lovely compliment but I feel like we've just been dropped and left to it on our own. We've got our first OT appointment soon and am worried that the same thing will happen and we'll be left to do it all without any help or support.
Is this completely normal? I feel like DS needs support from these services and obviously he qualifies for it otherwise he wouldn't have been seen by them in the first place. Are parents normally left to their own devices and have to support their children by themselves with very little outside help or do I have an unrealistic idea of what support he would be offered?
Here are some suggested organisations that offer expert advice on special needs.
SN children
Offered no support as I'm too 'on the ball', has anyone else experienced this?
CatchingMockingbirds · 08/12/2012 16:41
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