Here are some suggested organisations that offer expert advice on SN.
social communication language disorder(31 Posts)
My dd Speech and language therapist told me yesterday this is what my dd is diagnosed with. Previously it was described as Semantic Pragmatic language disorder. I read an excellent article by Margo Sharp called Understanding language (sorry l don't know how to link it) but this article described my dd to a tee. I definately think she dips her toe in the Asd specrum. Like the experiences of some of the mums here. She is the perfect child at school and then explodes when she comes home. She has also been diagnosed with Dyspraxia and SPD. I have been told by an OT she has autistic traits and the private Slt thinks she is definately on the spectrum. She is receiving ongoing slt and ot. She is very passive and struggles socially. I would be really interested to hear your experiences of this condition. She is nearly 9. Her brother has an SLI and was diagnosed with dyspraxia this week. He is 5. The OT used an assessment tool called the sensory integration praxis test. My dd was assessed 4 years ago using the movement ABC. Has anyone any experience of this test? he definately has dyspraxia. Im not questioning the results.
Am really glad for you gorta and sad at the same time. No child should have to wait so long for a diagnosis to be made. Imagine if you hadnt been so tenacious.
I gave up trying to get Dd1 diagnosed 15 yrs ago when I couldnt bear my parenting being judged anymore.
Dd3 was diagnosed with ASD on her 9th birthday after 3.5 yrs of assessments and fighting by me.I am even more certain than ever that Dd1 also has ASD and probably ADHD aswell.
Well done for not giving up, there are still alot of proffs out there who are not getting our girls
Be kind to yourself and good luck
I just wanted to give an update. My dd has been diagnosed with Aspergers. I brought her up north to Joanne Douglas. She specialises in autism and is very experienced. I am very upset but she has gotten loads of intervention up to now that has really helped her. It is difficult to believe that all the different professionals that have assessed her and worked with her since she was 18 months old did not recognise it. I had her assessed by public Asd services at 3.5 and I was sent home with she's fine. Her services will be increased and I will be listened to. My ds is more than likely As as well. I will cross that bridge when he leaves the language unit. I am very grateful to all of you that replied as it certainly put me on the right path.
Sorry I have posted twice!! I didn't notice the second page.
Thank you for all the advice. I made an appointment today with Joanne Douglas she runs the spectrum clinic in northern ireland. She worked with Lorna Wing. She specialises in Autism and if my dd is diagnosed it will be recognised by the services here.
I am going to check out bringing her to Joanne Douglas she has a clinic in Northern Ireland. She worked with Lorna Wing. I want her to be seen by someone specialised. Has anyone any experience of this professional?
Thank you for all the replies. My dd support has been greatly reduced this year due to budget cutbacks. I don't feel the principal understands her needs even though I have brought an Ot into the school and met with her teachers to explain her needs. There is a new team of, teachers who have only worked with her this year and are only now realising her needs. I have asked the educational psychologist to monitor her but the school have been useless from the social aspect. She has no friends and she has no social skills class. The Asd label is only being sought to reduce her social anxiety and make the school support her needs. The public professionals slt etc are looking to reduce her therapy as she is an older child and not a priority. We have worked so hard to support her and he has made such tremendous progress which I want it to continue.
Sorry, I've only skimmed this but my DS has a social communication disorder dx which was arrived at after ADOS. Basically, he has the classic autism spiky profile, but he is just under the threshold for a HFA dx. So if you need to 'score' 20 to get an ASD dx, he is scoring 19 IYSWIM. I am comfortable with this as a dx as he's getting the right support (ATM). So just wanted to say its not necessarily the wrong dx. Although do understand that girls often 'beat' the tests too.
Agree that the problem is with attaining a label - at the very first appointment with the developmental paed it was suggested that labels weren't always helpful. It was my impression that DS isn't considered bad enough to warrant help in a statement sense. I feel we are being bounced around various professionals & yet no closer to our label. Meanwhile he is unsupported in school, beginning to fall behind & I am resorting to reading what I can, & trying to support him from possibly the wrong sources.
Fair point, particulalry in the case of ASD but even without a diagnosis the emphasis should be on tackling presenting difficulties, irrespective of what thery are called.
The way that terms like SLI and SCD and semantic/pragmatic disorder are bandied about with no common agreement on what they are is very confusing and unhelpful.
I agree leonie for Dd3 the doors were firmly shut, bolted and padlocked without a Dx.
I wish it was the case in my area moondog but it quite simply isnt, even since the dx we still have to give the doors a hard kick to get them open
I really feel for parents and children whose children dont easily meet the criteria because it is so common for them to get stuck in the system like we did. Giong from proff to proff, each of them saying "Borderline for this, borderline for that".
Plus having the diagnosis has only been positive for us so far. Dd3 is getting some support at school and we as a family are able to deal with her issues more confidently.
I'd worry less about what you call it and more about what is going to be done about it by the people paid to help.
We are on this journey as well - DS has Sensory processing disorder, seems to display his behaviour mostly at school (although have my own concerns) They are currently suggesting a social communication disorder, for which we are waiting for a SALT assessment. Having read about Aspergers I think he is probably mlldly there, however DSM-5 seems to be given to children without the ridged/repetitive behaviour patterns.
I really don't want him to have a label that isn't right for him but am petrified of no label at all. He is in yr4 of primary. We have been going since reception.....
I think because the SLT cannot diagnose ASD, she is not wrong about the SCD but it probably coexists alongside the other things, the over arching condition could be ASD.
I just think when you put all of their issues together there is a bigger picture.
I think it would be good to get them both assessed because then you will know one way or the other.
I hope you dont have to wait too long.
Yes I do agree with you. But why is the SLT categorising both of my children under the DSM-5 social communication disorder. She has experience of children on the spectrum. Is she just completely wrong in the label she is giving my children. I just can't get my head around the fact.
Thank you for your reply. It is just goodtoget this out of my system. I am going to refer both of them tobe checked for Asd. My ds has been seen by a dozen different professionals in early intervention who never once suggested Asd.
I am sorry gorta but I think that SPD and dyspraxia and social communications issues are all autistic traits
Sorry if I have completely misunderstood.
Ok just one last question. Sorry to bore the socks off ye! I had a teacher parents meeting today about my ds who is 5 and in a language unit. The public slt there treats both my children and she feels his SLI will develop into a social communication disorder. She feels his development is mirroring my older daughter. He has problems in listening, attending to a conversation, taking turns in conversation topic maintenance etc. he is also diagnosed with dyspraxia and SPD. Ant thought going forward with him. I do fin him easier as he I not as rigid as my dd. he doesn't show autistic traits.
I really appreciate ye taking the time to reply. I will definately take her privately and get her assessed for Asd. I do think she will run into trouble in the future. We are able to support her now but it won't always be the case. She has a hard time with her peers but also has made a couple of friends which is great. She is not an obvious case but I think I would have more piece o mind knowing I have done all I can.
Hi gorta, the main reason I pushed for Dd3 to be diagnosed was because I felt she was going to struggle more when she moves to secondary school.
If you were to join the waiting list you could always cancel the appointment when it came through if you felt it was no longer necessary.
There are a few of us, me and leonie included who are always banging on about how different girls with ASD are to boys with ASD.
They are often passive although I have one of each [one hyper and one passive], at secondary girls who social communication difficulties can have a really hard time fitting in.
Good luck whatever you decide
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