As the title says really
Ds was dx xxy 3 years ago. It can bring it's own problems - social, behavioural, developmental and physical - but we won't know to what extent until he gets older and develops. What we do know is he will have to go through hormone therapy at puberty and will be infertile. Now I've been told he qualifies to be assessed for dyspraxia as his motor skills fall on the 5th centile. His fine motor especially are way behind.
I feel so sad for him. He was premature and small when born and his whole life has been full of appointments and assessments with various different health professionals. For which I am grateful in a way because I don't think his chromosome disorder would have been picked up otherwise.
I just look at my gorgeous wee boy and wonder how much more can be thrown at him as he also suffers a lot with chest problems. I worry about him being bullied as he gets older as the physical sides show. xxy already has this but if he has dyspraxia also? I remember how cruel kids are at school :(
I now feel terrible about shouting at him most mornings, and any other time, because he is incapable of getting ready himself. I thought he was just ignoring me/easily distracted in a way until the physio asked me how he was at organising and planning getting out of the door.
I don't even know what I'm trying to say. I've mentally dealt with his chromosome disorder even though it was a shock at the time but it's thrown me a bit with the possiblity of dyspraxia (even though I actually asked the doc about it 2 years ago as it just seemed to fit ds but was dismissed) There's so much worse I know and I feel a bit of an intruder here on the sn board.
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Sad and worried about ds. Sex chromosome disorder now being assessed for dyspraxia
13 replies
WhateverNevermind · 10/11/2012 00:28
OP posts:
PolterGoose ·
10/11/2012 08:38
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