Ds has had several episodes at night, which seem like choking - he screams, a kind of strangled scream, makes gargling noises in his throat, which seems swollen, his eyes are half open and blood shot, he is often stiff, his mouth droops om one side, they last up to 10 minutes and then stop suddenly and he sleeps, he has had an eeg which was clear.
He had one last week, whilst we were away. This one seemed a lot more 'seizure like' in that the mouth droop was more noticable, he was floppy on one side and stiff on the other, afterwards when he was asleep, one eye was very droopy and open. he was exhausted the next day and slept for a lot of it.
I phoned his gp requesting an appointment, and his paed. When i saw his gp tonight, she had spoken to the paed, and he thought that considering his history, it is in all likelihood a seizure and that it would be best to start him on epilim.
Our gp, was surprised by the suddenness of this decision, as am I. Has anyone else had epilim prescribed for their dc, when seizures aren't confirmed? I have worried myself by googling and have seen the possible side effects of epilim. Also i feel as though if we are going to have this prescribed, we need to at least talk to the paed about the 'seizures' - what are the potential dangers of ds having them? what sort are they? will he grow out of them? etc
I am so thrown by this that I don't know what to think (which is probably why i am rambling - sorry!)
Any thoughts would be welcome.
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Epilim prescribed, but we're not even sure ds is having seizures?
16 replies
hazeyjane · 30/10/2012 22:44
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30/10/2012 23:22
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