Got 21mo DS3's Paed report done on his speech delay/regression and his allergies.
Here are a few excerpts : "disruptive" "his attention span fluctuates, if he is interested in a particular activity he can concentrate for far longer than is age appropriate but in general he is very easily distracted and generally keeps moving from one activity to another and from one part of the room to another"
"He shows eye contact and some interaction with parents but does not interact appropriately with unfamiliar faces or make eye contact. In fact he actively avoids eye contact with unfamiliar people"
"XXXX's speech is delayed; he can hardly say one or two words. This is a clear regression from his one year check with the HV"
"Height could not be measured as XXXX would not stand still"
"Schedule of growing skills could not be performed properly as he was constantly fidgety and restless and could not be engaged in any of the various activities that are part of the Schedule of growing skills"
And in summation : "Regarding XXXX's Hyperactivity, there are gross concerns. Presently he is too young for assessment regarding ADHD but this needs to be kept in mind and perhaps he will need further assessment if there are still concerns."
FUCKITYFUCKITYFUCK.
He has ASD and ADHD, doesn't he?
Isn't two out of four that are already dxd with ASD/HFA ENOUGH??!!
I so so so so so wanted to be wrong. I have never wanted to be wrong so much in my life. But I'm not wrong, am I?
I wasn't even there about the hyperactivity, hasn't told anyone medical because I knew he was too young to be assessed. We were there about the speech and the allergies.
And if it is that obvious to the Paed, who had no idea that I had those concerns, then it is bleeding obvious, isn't it?
Buggerbuggerbuggerbuggerbugger!
Plan if action?
- Referral to CADU (Child Assessment and Development Unit) for assessment.
- Referral to SALT - already have my first appointment despite the current 18mo waiting list (!)
- Referral to Physio, in view of strong family history of Hypermobility, and although he is actively mobile and runs around, he can be very clumsy, as witnessed.
4) Section 332 notification has been made to Educational Psychologist
5) Blood investigations including Full Blood Count, urea electrolytes, Liver enzymes, Serum CK, Blood Glucose, Iron profile, Thyroid profile, Plasma amino acids and chromosome studies for Fragile X syndrome
and Microarray. Urine will also be requested for amino acids and organic acids.
- XXXX will be reviewed in the CADU.
Wtf is number 4? Not come across a 'section 332 notification to the EP' before. And why an EP at 21mo? Especially in an area where you can't get an EP visit for a 14yo, or a 9yo for bloody love nor money?! New one on me. Any explanations?
And as for number 5, the only one that makes sense to me is testing for Fragile X. Which will come back negative, same as DD's test for it, and DS2's test for it. Can anyone explain the reasoning behind the rest of the things they want to test his blood and pee for?
And just to hold my hand.
He had his anaphylaxis allergies fully dxd on Wed by skin prickly tests on Wed too. Then this report through the door today.
Skin prickly tests, he went into anaphylaxis. From the skin prick tests. To CMP. And Nuts. And 'moderately' reacts (I.e. bad but stops short of ana) to soy. He's so bad that the local Paed allergist is washing his hands of him after just one appointment and sending him to the Eveline in St.Thomas's in London.
Because another hospital added to the 8 I visit already every year, about 50 visits a year between 3 of us currently, was JUST what I needed, right?!
Aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaarrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrgggggggggggggggggggggghhhhhhhhhhhhhh!!!!!!!!!
I wanted to be fucking WRONG this time.
