because my very special DD is 18. But she is completely oblivious to it all. I have just put her on the bus to school, complete with Birthday cake (which she can't eat). They will be having a 'pamper' party in class this afternoon to celebrate, which is lovely. But as I came back in the house, alone, I shed a tear for the fact that her life is so different to that of other 18 year olds. She is still really a baby.
I am happy, because she has made it this far... there have been many times when we didn't think she would, so today is a real milestone when we recognise that medical science has got her this far. I am happy because of all the fantastic people we have met along the way - professionals, many of whom have been incredibly supportive and gone the extra mile, friends, particularly those who have disabled children of their own, so understand exactly how life is and not forgetting the support of friends whom I knew before DD was born, who have stuck by us even though our lives are very different to theirs, and of course our family, who have been there in times of crisis and have accepted DD for who she is.
But at the same time, I am sad. Her life is so different to what it should be. She is totally reliant on others for her day to day needs, which makes her very vulnerable. Today, we leave behind 'Childrens Services' and move on into the world of Adult Social care - which is very different. Many of those professionals that we have 'bonded' with over the last 18 years are gone..... and not surprisingly, the new ones are not yet in place! All those years of learning to trust other people to care for DD in respite and now we start again at the very beginning. It is a very scary time for us.
So as I sit here typing this, the tears are pouring down my face on what should be a day of celebration. In a minute, I will pull myself together, put up DD's birthday cards and decorate the living room with 18th banners and balloons in the hope that, when DD gets home from school,she will notice that today is a day with a difference, and its all for her, because we love her so very much. Happy 18th birthday DD - you have changed our lives beyond recognition and made us better people as a result of that.
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Today is a day of mixed emotions...........
9 replies
bigbluebus · 23/10/2012 09:01
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zzzzz ·
23/10/2012 09:40
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justaboutchilledout ·
23/10/2012 09:45
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