Help. Does anyone on here have experience of a child with a long term catheter? Mitochondrial disease has caused my stepdaughter's bladder and bowel to stop functioning. She will have a catheter inserted in her tummy, hopefully with a button and a tube emptier rather than a bag, as she would struggle to cope with a bag. We also will have to do daily bowel washouts. Anyone know how this sort of thing goes on a daily basis? How long does care take and how easy it to to keep infection out? We're feeling very daunted. SD has very little sight - will she be able to use the emptying tube herself, anyone think? She manages to insert meds into her gastrostomy herself via a syringe. A bit of hand holding needed really.
Please or to access all these features
Please
or
to access all these features
Here are some suggested organisations that offer expert advice on special needs.
SN children
Please create an account
To comment on this thread you need to create a Mumsnet account.