Got a letter today saying DS (ASD / hypermobility) has been awarded middle rate care component and high rate mobility (he is almost 4). I feel guilty as he can walk, although is wobbly and falls more often than NT kids. I filled in the form thinking about his worse case scenarios (he will often just stop walking, will walk backwards, refuse to enter shops etc. If I try and put him in the buggy he will have a huge meltdown, kicking and screaming. I know they contacted at least 3 of the professionals I listed on the form for reports, but I can't believe he is really severe enough to qualify for this and I am scared to spend it incase they have made a mistake. The thing is, although he wouldn't understand road safety if you explained it, he does know that we always walk on the path and he often does stop at roads.
I guess I am half thinking someone from the DWP will be secretly sent to observe us and sometimes DS can be as good as gold (when we are going somewhere he wants to go) and will walk along holding my hand and chatting. The DWP did ring me and ask what happens when DS decides to stop walking and asked if he could be persuaded to keep walking (haha, if DS decides he's not going to do something nothing can persuade him!).
Just posting to assuage my guilt really.
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Awarded high rate mobility, am worried they have made a mistake
4 replies
zen1 · 17/10/2012 14:10
OP posts:
zzzzz ·
17/10/2012 14:50
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zzzzz ·
17/10/2012 15:03
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