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Here some suggested organisations that offer expert advice on SN.
Has anyone ever gone to GOSH with a dc suffering from complex refractory epilepsy.We have asked dd paed consultant for second opinion as we are scrapping the barrel of epilepsy meds to control seizures. We have been in and out of the hospital for the last 9 weeks with this issue.Just wondering if GOSH is as wonderful as the olympics made it out to ;)
My DS had his scans at GOSH after he started fitting but we managed to wean him off the meds. We weren't under epilepsy but our experiences of endocrine, gastro, feeding etc were all excellent. Hope you get some answers.
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