Here are some suggested organisations that offer expert advice on SN.
Transition to adult services from sn residential school(22 Posts)
I had a useful chat with someone from the Disability Law Service www.dls.org.uk/ Telephone: 020 7791 9800 when seeking a residential placement for my son after residential special school. They offer free telephone advice. You may have to leave a message but they will get back to you.
I got myself appointed as son's deputy for finance and welfare - this is onerous and you may prefer to get a solicitor to act for you. (Think it is harder but not impossible to get appointed for welfare).
I think you can still apply to the Court of Protection for a "best interests" judgement even if not a deputy. Best of luck
I don't know smallprof, with the cuts I have found that SS will try and provide less than the bare minimum. They tried to cut ds1's care plan last year and only backed down when I pointed out they were behaving illegally.
I always feel its best to try and work together. If you network and form good working relationships thats half your battle.
Google about Best interest meetings. These are for people who lack capacity.
Ask for a carers assessment. Then you will get a social worker in your own right.
Research all the local living options/ residential service providers (they do supported living as well these days). Look into individual bedgets and direct payments.
Wow - respect! You deserve to sleep well tonight.
Stick around. You'll be an expert in this area soon and you never know when another Rafflesway may come here in the future and ask the same questions as you'll have the answers for.
Hi raffles. I cant really offer any other adviceas there is already some good advice on here but wanted to add my sympathy. My DD will also be 18 this year and in spite of having a Transition plan since she was 14 (which doesn't have anything remarkable in it - we hope she can move from the local SEN school to a local private SN college but she will stay living at home with us ftb) nothing has been done. I had a letter from the Adult Social Care Transition worker last October saying that a referral has been done to the Adult Social care team to assess DD's needs, but so far nothing has been done. I have chased it up once, but still nothing. DD has complex health needs as well as severe learning and physical disabilities, and our home respite package which is provided by the PCT is due to end on her 18th birthday - but as no assessments have been done by SC or health, I am finding it hard to see how a replacement package will be in place in time for her 18th birthday.
I do know that they will allocate DD her own social worker ( as the one we have had in the past works for the Disabled childrens' team - so she won't continue)but am confident that me and DH will be involved in any decisions about DD's future.
I too am quite concerned that we are being ignored - but have already got some good legal advice from a local firm of solicitors who take on care package cases and DH went to a Cerebra Transition conference recently where a solicitor called Luke Clements (who specialises in this area) gave a talk on the legal aspects. So we are well armed with our legal rights, but like you, we just want to try and sort things amicably, without having the stress of going down the legal route.
If you can get to a Transition event run by one of the big charities such as Cerebra or Contact a Family, I'm sure you will find lots of useful info.
There is an event in Solihull, Birmingham on 24th May run by Progress Magazine. Don't know whereabouts you are but if that is any use to you, let me know and I will post further details.
Also google Progress Magazine as you might find some useful info on their website.
I'll message you later, but I only know about what happens in Scotland. I'm just posting here so I don't lose your details.
social services are usually hopeless. A lawyer is a good idea because ime SS don't do anything unless they HAVE to.
Good luck - but you may find a big change with a new school - school's are usually onside.
Agree get legal advice. Your child should get legal aid in own name. I would try a firm like Irwin Mitchell as I know they do work on guardianship, court of protection and have done a lot of cases about cuts in social care etc.
One option I heard about recently was putting your child's name on the housing list in your LA. Check this out with the lawyer.
As far as the looked after child status is concerned, this applies under the Children Act but as far as I know that only applies until 18. Once she is an adult I can't see how she can be a looked after child. She will be an adult and come under Mental Capacity Act. That Act makes it clear parents should be consulted if the young person does not have capacity themselves.
Many many LAs are looking to cut costs at the moment and I have heard lawyers say that in years to come they expect young adults to end up back with their families as the care system is just crumbling.
I would get some legal advice now.
I found this case where parents were not consulted and the LA choice of placement quashed due to lack of consultation, so you do have the right to have a say.
R (on the application of W) v CROYDON LONDON BOROUGH COUNCIL (2011)
 EWHC 696 (Admin)
QBD (Admin) (Ouseley J) 03/03/2011
A local authority's decision that a young adult who lacked capacity within the meaning of the Mental Capacity Act 2005, and to whom it was obliged to provide accommodation under the National Assistance Act 1948 s.21, should be moved from his existing placement to a different facility was unlawful where it was made following insufficient consultation with his parents and the existing service provider, as required by the National Assistance Act 1948 (Choice of Accommodation) Directions 1992.
The claimant (W) applied for judicial review of the defendant local authority's decision to move him from his accommodation placement.
W was a young adult with autism and learning disabilities. He lacked capacity for the purposes of the Mental Capacity Act 2005. He lived in accommodation (H) with facilities for young people with behavioural difficulties, paid for by the local authority pursuant to its obligation under the National Assistance Act 1948 s.21. In March and June 2010, the local authority assessed W's needs. It concluded that H was no longer suitable as it did not encourage his independence and was overly restricted and isolated, but also because it cost £4,800 a week, more than twice what the local authority would usually pay to accommodate someone with W's needs. In July 2010, the local authority informed W's parents that a review and assessment had been completed and that it was necessary to hold a best interests meeting to discuss the issues identified. On the morning of the meeting, W's parents were provided with copies of the assessments. H was not represented at the meeting because of a misunderstanding about their availability to attend. During the meeting, W's parents objected to their late receipt of the assessments, and pointed out some errors in their content. It was their wish that W remain at H as he felt safe, secure and happy there. In August 2010, the local authority gave H the required notice of its intention to transfer W to alternative accommodation. W's parents later wrote to the local authority raising their concerns about what had happened and stating their view as to the appropriate accommodation for W. H also responded to the assessments.
W contended that the process of consulting his parents and H, as service provider, for the purposes of the best interests meeting had been inadequate. He submitted that the local authority's decision to move him from H had been taken before the July meeting and that insufficient information had been provided in time for his parents to respond. W further argued that the views of his parents and H had not been taken into account, contrary to the National Assistance Act 1948 (Choice of Accommodation) Directions 1992.
HELD: The local authority's decision to transfer W from H had not been taken before the July meeting. The local authority clearly had a firm but provisional view as to the unsuitability of H as a continued placement, but there was no evidence that it had not been prepared to consider the views of W's parents as to the continuing suitability of H and their wish that he remain there. The local authority had listened to the parents' views and there had been discussion about the problems at H to which they had responded (see para.37 of judgment). The consultation had, however, been inadequate. The local authority had known that the question of whether W should stay at H would be an important one. There had been nothing in the local authority's letter inviting W's parents to the best interests meeting to alert them to the issue of how far the local authority's thinking had gone as to H's lack of suitability and the cost of maintaining that placement (para.38). W's parents should have been involved in the earlier assessments of W's needs and they had been given insufficient time before the July meeting to consider and formulate their responses to the proposal that W's placement at H should end. The local authority had taken its decision to terminate W's placement with H and the matter was effectively closed before his parents had presented material on which they wished to rely (para.39). Moreover, the views of H, as service provider, would have been valuable (para.40). The local authority was entitled to terminate W's placement because of the greater cost or because of the view it took of the nature of the place in relation to what it assessed were W's needs. However, one of the purposes of a consultation process was to enable other views than those which it formed on a provisional basis to influence it (para.41). Even if their points were ultimately rejected, it was important for W's parents and H to know that they had been understood and taken into account. The decision to terminate W's placement at H was, accordingly, quashed (paras 42-43).
For the claimant: Mr Cragg
For the defendant: Miss Scott
For the claimant: Irwin Mitchell
For the defendant: In-house solicitor
You may find things improve when she changes school. I suspect the problem is that she is classed as 'looked after', yes it should get you extra services but it does make it harder for you to have a say. I wonder whether she can be 'un' looked after?
As a comparison ds1 will need lifelong 24 hour can and we have been told that we start discussing transition to adult services next year when he is 14 at his annual review.
I vaguely remember that the book growing up severely autistic they call me Gabriel discusses the transition to adult services.
This link tells you a bit about 'Looked After' children, what social services should be doing for her and how you should be involved. I know it's not your Local Authority but these guidelines will be national:
Having just seen your reply to Nigel (above) about your DD's 'Looked After' status I agree with Nigel that you should definitely engage a Community Care solicitor.
Her school should be doing a lot more to inform you about her future options and advise you on the agencies you will need to contact. They sould be drawing up plans for her immediately.
And these agencies do pay more attention when a request comes from school / university rather than if the request is made by the parent. I couldn't get social services support for DS until his University contacted SS themselves (with our blessing) to raise concerns and ask for support for him. Social services then undertook an assessment of his needs and determined he was eligible for Direct Payments so he can pay for 3rd party assistance in his case from the NAS.
I think a letter from her current school to your local social services ststing that she will be returning to live in her home area from (date) and requesting an assessment takes place before that date would be appropriate.
Connexions also need to get involved so try ringing your local Connexions and demand a Specialist Connexions SN advisor from your area visits her (they do travel). You may have to be very insistent to get one. There are many residential options post-19 that are funded by Social services. To obatin this you'll have to prove that there is no local FE College that meets her needs so a residentail placemnet is the only viable option that meets her social and educational needs.
Also, you can apply for your own assessment for her as for you as her carer under the (Care Act?? I can't remember the exact title ).
You should also consider contating any support groups in your own area or failing that the national charities that match your daughter's condition who should be able to advise you on what is available locally.
You can also apply to your local housing association for supported accommodation for a vulnerable adult.
The DWP will deal with me as I open all correspondence to them with the statement 'I am the DWP appointee for my son xxxx...).
The Local Authority will deal will me because I typed a simple letter from my son to them instructing them to deal with me as his 3rd party representative. You could do this if your daughter is able to physically sign or mark such a letter.
The Direct Payments company deal with me as DS instructed them to do so.
I would contact the Head of her current school and ask her to convene a multi-disciplinary meeting of all the agencies that are (or should be) involved with her to provide their inout to a Transition Plan. Those parties should include, you, Social services, Connexions and any medical people who may also be able to provide their input.
I would make that request to the HT in writing - and all my communications with any of these parties would be in writing to preserve a record.
Just waiting until the end of her final term and expecting her to return home with no plans for the future and no support in place is just not viable.
Look for a solicitor under the Legal Help scheme who offer specialist support in Community Care. The income to qualify will be the persons income so if they are on income support they will automatically qualify.
My DS (Aspergers 23) is seen by Adult Services. I've found that Adult Services do involve me but that's probably because DS asks them to - he doesn't feel confident dealing with them himself.
Have you spoken to Connexions. They are supposed to provide advice and support for young people up to age of 25 who have Statements. Be sure though to ask specifically for a Connexions Special Needs Advisor as most of their staff have very little SN experience.
Your DD should have had a Transition Plan drawn up while she was still at school which gives the multi-agency view of how she should be supported into adulthood and beyond.
I'm sure you can continue to act as your DD's advocate. I just don't know much about you you achieve that beyond being her DWP Appointee but I would hope that one of the charities or even IPSEA could advise. Failing that you may be able to get her legal advice via an application in her name on her behalf to discuss matters with a solicitor (would suggest Disability or Human Rights focused lawyer).
We have some lawyers on here who may know more about capacity etc.
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