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Here are some suggested organisations that offer expert advice on SN.

can anyone recommend a behavioural optometrist nr London-ish?

(49 Posts)
yuckythingsonthefloor Wed 07-Dec-11 17:54:44

Hello there

The physio at my DS's school has flagged up a problem with visual tracking and suggested I take him to a behavioural optometrist.

Can anyone recommend one in the SE?

Also, I've got him booked to see someone next week for Retained Reflex Therapy but is there overlap with this?

linspins Wed 07-Dec-11 20:59:43

I am not sure if this place may be able to help or advise you...they are Harley Street and now in Tunbridge wells too.

IndigoBell Wed 07-Dec-11 21:07:02

You're very lucky somebody noticed a problem with his eyes!

Here is a list of all the Behaviour Optometrists in the UK.

Tinsley House are near Southampton, and they're the only place I know that does computerised vision therapy (which is more effective than normal vision therapy)

Behaviour Optometrists do a little bit of retained reflex therapy, but you're far better getting a specialist OT to do it ( or Tinsley House smile )

(Also Retained Reflex Therapists do a little bit of eye work - but you're better getting a specialist Optometrist to do it smile )

dontrememberme Wed 07-Dec-11 21:25:52

We've seen Professor Arnold Wilkins at Essex Uni. He is well published, invented some of the tests that hospitals use, has an interest in Autism, epilepsy, visual stress etc etc.
He's a lovely man & even if he cant help he can recommend someone who may be able to recommend someone AND he's free!

yuckythingsonthefloor Wed 07-Dec-11 21:36:26

Thanks everyone

Indigo, am going to Hemispheres. Thought visual tracking was a retained reflex issue?

Don't remember me how come he is free? Can I just ring him up?

dontrememberme Wed 07-Dec-11 21:55:48

his name was on the back of an info leaflet the hospital behavioural optometrist gave me. So i googled him and he was listed at essex uni & cambridge uni.
I looked him up on the uni website and emailed him asking him for advice. He invited us to the uni for him to assess ds2 as he said he couldnt advise without assessing.
I guess as he is employed by the uni & has a genuine interest in the difficulties our kids have he is happy to help & he is just a very nice man.
DS2 was not seen by any students or anything like that.
I have amailed other professors in the past, i generally find as they are not in it for the money they are more than happy to offer advice

blueShark Wed 07-Dec-11 22:06:29

DSs visual tracking is almost fixed by the retained reflexes therapy.

silverfrog Wed 07-Dec-11 23:38:30

Can thoroughly recommned Hopscotch for OT/Sensory Integration, but the whole vision thing is not really their area (or wasn't when I used them for dd1). got brilliant results from SI, though. really amazing. didn't know Hopscotch were now in T Wells too? can't find info on their website to say that.

IndigoBell Thu 08-Dec-11 07:07:06

Visual Tracking is not fixed by RRT.

DS1 has been doing RRT at Sound Learning Centre for 18 months.

His vision has improved a lot in that time, but it is not fixed. He still has convergence insufficiency, and eye tracking problems.

Which I didn't know about till I took him to be seen by someone else.

(Although he hadn't finished at SLC, so maybe if we'd got to the end of the program they would have fixed it - I don't know. But knowing what I do know now, I don't think they would have.)

mrsbaffled Thu 08-Dec-11 09:11:45

We are about to start a course of vision therapy at a behaviour optometrist in Milton Keynes. It's to help with tracking issues. She briefly mentioned something about retained reflexes...I will ask about it again later as it's DS's preliminary assessment today.

yuckythingsonthefloor Thu 08-Dec-11 09:51:56

It sounds like I need to do both as DS def has problems with both, so am going to do RR first and then VT. Love the sound of the professor in Cambridge and would love to meet him, otherwise it's Milton Keynes for me or poss even Tinsley House?

Linspins, I know Hopscotch very well! We went there for some time and they helped DS enormously. Ditto I don't think Behavioural Optometry is their bag, but I could ask.

Indigo, I know you are rightly full of the joys of Tinsley House at the moment! What does TH do that is different from SLC or Hemispheres where we are due to go next week? Do Tinsley House call their exercises retained reflex therapy? Btw have just come back from health food store with stocks of

OnTheBen10DaysofChristmas Thu 08-Dec-11 09:57:41

We were seeing Suzanne eisemann at the Christmas childrens clinic in tunbridge wells who is a director of hopscotch as well. They were moving to salomans outside tunbridge wells. Weve still got six sessions paid up front so will find out and update. She is great for SI therapy on childrensmile

OnTheBen10DaysofChristmas Thu 08-Dec-11 09:59:16

We get free vision therapy and rrt at the Essex county hospital in colchester run by Dr Annette grounds who worked with Dr wilkins

OnTheBen10DaysofChristmas Thu 08-Dec-11 09:59:30

We get free vision therapy and rrt at the Essex county hospital in colchester run by Dr Annette grounds who worked with Dr wilkins

OnTheBen10DaysofChristmas Thu 08-Dec-11 09:59:38

We get free vision therapy and rrt at the Essex county hospital in colchester run by Dr Annette grounds who worked with Dr wilkins

OnTheBen10DaysofChristmas Thu 08-Dec-11 10:00:29

Whoops sorry. I'm on a. Train and didn't think it had postedblush

IndigoBell Thu 08-Dec-11 11:06:27

The exercises TH do aren't RRT. there is no overlap between them and SLC and Hemispheres etc.

TH looks at the problem from which part of the brain is underdeveloped - whereas RRT looks at it from which part of the body is underdeveloped

SLC were good, and have helped both my kids enormously - but I think TH is even better. (and cheaper)

And, like I said, they are the only person I know who does computerised VT rather than manual. The other places use a computer when you go there for your session, but you don't use at at home every day. Whereas with TH you do the therapy on the computer every day. (I think - will report back in Jan)

the normal VT DD did, didn't really work, but I was told it had worked.

I think every person does something slightly different, and they all call it VT (or RRT) - so the person you go to might be significantly better than who DD went to.

I also don't know if we would have seen such dramatic improvements from TH if we'd started with them, because going to SLC has certainly helped.

yuckythingsonthefloor Thu 08-Dec-11 17:03:31

Sorry to keep plying you with questions IB, but how do they determine which part of the brain is underdeveloped? Also, my DS does have motor planning issues and sensory issues but not dyslexic his dx is really ASD - would be be a TH candidate?

dontrememberme Thu 08-Dec-11 19:02:14

ben10. we were having vt on the NHS via Ipswich hospital but they have cut the service it was Ipswich that gave me a stack of leaflets & explained who Dr Wilkins is.

IndigoBell Thu 08-Dec-11 19:56:56

TH deals with children with dyslexia, dyspraxia, ADD, ADHD, OCD, Touretts and some forms of ASD (the mild kind like my DS has - the kind that has loads of overlap with those other conditions)

All 3 of mine are being treated at TH smile (Aspergers, dyslexia and dyspraxia)

They did loads of vision tests, a timpani (?) hearing test, hit her with a reflex hammer, tickled her with a paintbrush, etc.

And of course asked us all the normal questions smile

(Apparently) Most kids with these conditions have problems with the left cerebellum and the right pre frontal cortex. But a few have it reversed.....

How I understand it is the cerebellum controls moving the body, ie motor planning and things like that. (So sounds like he has this problem)

And the pre-frontal cortex controls social and emotional stuff. (Ie all the ASD stuff)

The first stage of the treatment works on the cerebellum - ie improves how you move.

For the last 2 weeks DS1 has won 'player of the week' at rugby! and DD won her race for the first time in this age category! So clearly both of them have improved physically.

mrsbaffled Thu 08-Dec-11 21:29:23

Had our preliminary assesment for vision therapy toady (in Milton keynes). It turns out it is really RRT. She reassessed his focussing and tracking and then took us into a large room and assessed his reflexes. His worst one is spinal galant reflex. We have been given a few exercises to do over Christmas and are starting a course of therapy in January with fortnightly sessions.

IndigoBell Fri 09-Dec-11 09:43:03

MrsBaffled - Really glad you are starting to get some answers.

RRT means daily exercises for at least a year - but everyone on this board who has done it has reported improvements.

yuckythingsonthefloor Fri 09-Dec-11 10:18:21

Mrs Baffled - can you please tell us the name of the Vision Therapist in Milton Keynes?

mrsbaffled Fri 09-Dec-11 10:58:19

Milton Keynes Optometrist
Hope that helps x

mrsbaffled Fri 09-Dec-11 11:00:35

Indigo I have read a bit about the spinal galant reflex since coming back and it describes DS to a T (apart from the bedwetting) - I am hopeful that the therapy will really help. She said it won't help with his writing, but I can at least help with one half of his problem x

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